Listening to Madness

by Jill on 5.8.2009 · 129 comments

in Mental health

This is an interesting article on an issue I know very little about. Thoughts?

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{ 125 comments }

1 4min33sec 5.8.2009 at 12:55 pm

Good for them, but the real value is in the people who have already done this alone.

2 Cara 5.8.2009 at 1:27 pm

First of all, I think that everyone should do what is right for them. I’ve known plenty of people who have different mental health diagnoses and prefer to go without medication, and seem much happier for it. And yes, forced institutionalization is fucked up and wrong beyond words.

But. I’ll also say that while I don’t have the more “extreme” kinds of conditions talked about in the article, “just” depression, I spent a good old chunk of my teenage years believing that depression was like, totally “beautiful” and shit. And believing that if I went on anti-depressants that I would never be the same or feel anything or be creative ever again. I know that does happen for some people. But for me, once I finally relented? I still have plenty of emotions. I can just control them better and don’t want to kill myself while having them.

So, I think there is obviously a stigmatization of mental illness and thinking that “crazy” people need to be on medication for their own well-being and for the safety of society. But I also think that there’s a counter stigmatization that medication makes you weak and half-human, and that all of these amazing artists had mental illnesses that went untreated, and that is what made them great, so you should want to be just like them. And while I really do get why it’s there, I see a bit of that in Icarus’ rhetoric.

Again, just speaking purely for myself.

3 Caroline 5.8.2009 at 1:38 pm

It’s really complicated. There is certainly some truth to the idea that psych meds are often badly prescribed, without helping patients get any additional coping skills or dealing with underlying causes. And in some situations they can be abused as tranquilizers, regardless of what’s truly best for the patient.

There is a lot of truth to the idea that psych meds are a really useful tool for a lot of people — including me. When I’m severely depressed and anxious, I don’t have the things that make me wholly myself — my joys and sorrows and anger, my opinions, the ability to have new experiences, the way I approach problems, are all suppressed. I’m much more myself with the right meds than I am without. They give me back the person I am when the depression and anxiety lessen on their own.

Some mental illnesses call into question the idea of consent and agency on the part of the patient — whether someone is capable of choosing to stop meds or refuse hospitalization. That’s obviously a dangerous slippery slope to deal with. The idea has been used as a dangerous, harmful weapon in the past — against women, queer people, trans people, people of color, anyone who threatened the power structure.

But if one of my friends tells me that ze is about to kill hirself or has already taken drugs to do it, I am going to call 911 and send the paramedics to that person’s house and try to save hir life, even though ze decided to die. Because I don’t believe a person who is depressed is capable of making hir own decisions about whether to end hir life. That takes away my friend’s agency and autonomy, and means ze’ll be involuntarily committed for at least a short period of time. But I think not doing that is wrong.

I guess my line is “imminently dangerous to yourself or others.” That’s when I think forcing someone to take meds, or forcing someone into a hospital, is not only okay but the right thing to do. But that’s a really gray and fuzzy line, because mental illness can be unpredictable.

4 Linoleum Blownaparte 5.8.2009 at 1:41 pm

What Cara said, adding that being able to refuse medication is a nice choice to have providing you have access to that medication in the first place.

5 Liz 5.8.2009 at 1:47 pm

This article troubles me. I’ve known plenty of people who have been diagnosed with various mental illnesses who feel that the meds they were prescribed limit them in various ways, ways that are touched on in the article (stifled creativity, dulled intelligence, sluggish feelings, etc.), and I’m sure that, in this space, I don’t have to go into the problems with the mental health industry and the stigma mental illness carries. But I also know people — specifically my father (bipolar disorder) and myself (depression) — who quite literally cannot function without their meds. And sometimes both things are true — a bipolar friend of mine feels creatively stifled while on meds, but recently had an episode in which her meds weren’t right and so she had a break, during which she became suicidal. And I wonder — would it be better for her to be able to paint again in spite of the risk (and, for those who care about her, the very real fear) that she might kill herself? I can’t answer that; that’s not a choice for me to make. I do know, though, that for me, I don’t feel like my meds interfere with my creativity, and if they do and I don’t realize it, then I’m still better off in that respect than without them — kinda hard to write when all you do is sleep (and cry, and cut on yourself a bit).

It also seems like the issue of mental illness and the treatments for it intersect in a major way with issues of class. On one hand, if one is coming from a position of poverty or a lower class standing, then it can be difficult to get a diagnosis and/or treatment in the first place. On the other hand, it seems like it might be easier to choose to be Icarus if one doesn’t feel like one needs to worry about holding down a job, supporting one’s children or other family members, etc.

6 Liz 5.8.2009 at 1:51 pm

Shorter version: I second what Cara, Caroline, and Linoleum Blownaparte said. ;)

7 Persia 5.8.2009 at 1:55 pm

I spent a good old chunk of my teenage years believing that depression was like, totally “beautiful” and shit. And believing that if I went on anti-depressants that I would never be the same or feel anything or be creative ever again. I know that does happen for some people. But for me, once I finally relented? I still have plenty of emotions. I can just control them better and don’t want to kill myself while having them.

Same here. And I can’t help but think– if you took the words ‘mental illness’ and substituted ‘cancer,’ how many people would think these people were worth listening to? Yeah, we don’t know the best way to treat cancer, and some cancers may not need to be treated, but holy shit, that doesn’t mean we should embrace it. Too many people are hurt.

8 Talulah 5.8.2009 at 1:57 pm

I had all sorts of clever responses to this article, but then I realized that I simply could not relate. I suffer from anxiety, not schizophrenia or bipolar disorder. I have never experienced a period of euphoria that didn’t have something to do with winning a game of Trivial Pursuit. When I take my meds, I never feel like I’m losing a part of myself; I always feel like I’m being liberated. Because there were no bright spots in my illness and there was no wisdom to be gained: it was nothing but endless misery and mindless fear.

So I get that I don’t get it. I see it as a disease to be treated; other people don’t. That’s fine. But the problem I have with avoiding medication or advocating “natural” treatments for serious mental illnesses is pretty simple: you aren’t the only one who has to live with the conseqences. Will Hall “periodically descends into dreadful mental states. He considers harming himself or develops paranoid fantasies about his colleagues and neighbors.” That doesn’t just harm him: it also harms the people who love him. Talking someone down from suicide is not fun or easy, and it does not leave you undamaged. I just…I get that people don’t want to lose themselves, but these illnesses cause so much collateral damage. I don’t believe we have to be ashamed, and I don’t believe that drugs are always the answer, but I *do* believe we have a responsibility to those around us. And accepting periodic suicidal or paranoid states as just a fact of life? I’m sorry, but that seems selfish to me.

9 Erika 5.8.2009 at 2:18 pm

I have such mixed feelings about this. I’m in a relatively unique position, I think; I’ve been hospitalized without my consent. Being involuntarily committed to a locked psychiatric facility is, and I cannot say this forcefully enough, the absolute most degrading and humiliating thing that has ever happened to me, and I cannot imagine anything worse. It was truly traumatic, and for that reason (and that reason only) I have really come to respect a lot of the arguments made by the “anti-psychiatry” movement. It is all well and good to have an intellectual stance about the well-being and safety of those who are mentally ill, but unless you have been in a situation where your rights and autonomy are removed, you have so little perspective on what that stance actually amounts to.

My point, then, is that, I totally understand and respect the desire for people with mental illnesses to assert their autonomy, agency, whatever. It is so often restricted. The frustrating thing, ultimately, is that psych professionals are (usually) trying to help their patients. Unfortunately, regardless of the discomfort that some conditions cause, psychiatry, therapy, hospitalization, etc. can often be very ineffective. Many people have incurable mental illnesses, so it’s incredibly frustrating when treatment after treatment doesn’t work. When the treatments start to restrict your agency AND they’re ineffective, what’s the point of the diagnosis? It may not be the most sophisticated or productive way to alleviate the distress caused by (what I and most researchers consider to be real) mental illness, but I understand why this is happening.

It’s not for me, though. I hope the people who join these groups find the support they need in friends and family, because mental illness, especially the ones that land you in the hospital when you don’t ask to be, can be extremely dangerous. I totally respect that they choose not to take medication, but I hope that they stay safe. Suicide is truly tragic and happens all too often. I’m not at all convinced that it can be prevented with medication and therapy, honestly, but I think it can help some people. I just hope that these groups provide enough of a support system so that they can be safe.

10 SnowdropExplodes 5.8.2009 at 2:18 pm

I have a lot of sympathy for the “mad-pride” approach, and certainly view medication as a port of last resort rather than “diagnosis-prescription-cure”; fact is, many mental health conditions don’t “go away” after treatment, so talking about a cure is misleading anyway. On the other hand, there are plenty of people who do need the port of last resort, because everything else has failed. I respect the “pro-choice” line that the Icarus Project claims, and I think that Kramer may not be as far from them as would appear judging by the works it says he’s written on this pro-choice line.

My own experience is of depression, at times very severe. The first time I went to my GP with it he wanted to prescribe medication, but I was resistant to the idea; just knowing that what I was feeling was real and had had a cause, was enough for me to deal with it. That was definitely the right decision for me at that time. Some years later, however, I had a very severe relapse and I knew that I had to get help that was more than just talk-therapy. In short, I wasn’t going to survive without something extra to balance the chemicals in my brain for me. Medication was the only way to stay alive. Again, I think I made the right choice by asking my GP for meds.

The attitude that my depression is a “dangerous gift” is familiar to me – I think the approach I have is that I take the meds because dangerous gifts need to be treated carefully!

My (now ex-)girlfriend Julie suffers from bipolar, and I supported her through a period of forced treatment. I was very much opposed to her being heavily medicated, but on the other hand, she shared with me a lot of what was going on for her; again, she was not in a reliable state to choose whether or not to take her medication. I also witnessed how rapidly her moods went out of control when she did refuse her meds and I had to talk her down from some very dangerous indeed mental states and help her cope with the idea that actually, she did need them just in order to be able to function. In the first week or so, it really did require someone else to take charge of the situation, and to force treatment, otherwise she would not have survived (the requirement in UK law is that a patient be a danger to hirself or others before zie can be detained for treatment). For Julie, the medication is what allows her to be herself and allows her condition to be something beautiful instead of just destructive.

I think the key thing is for PwMHC (People with Mental Health Conditions) to be allowed to be the experts on our own minds, as much as possible: so that we can make our own informed choices about whether or not to take medication, and have the support needed in order to carry out our choices safely. I think, from that article, that this is what the Icarus Project is about, but the activist that they interviewed did not really make his case very well on that point. Also, of course, there does have to be a recognition that sometimes a mental health “storm” such as Julie suffered can make that unfeasible.

I would certainly agree with the Icarus Project’s rejection of describing these conditions as illnesses or diseases though: even though I resolutely say that I do sometimes suffer from depression, I also sometimes suffer from tiredness or muscle strain! Recognising that PwMHC can function perfectly well as human beings in work, play, social interactions etc, just as PwD can, and eroding the stigma surrounding mental health conditions, is very important.

11 Angela 5.8.2009 at 2:43 pm

I have yet to read the article in full (I was taking a quick break at work!), I just wanted to say a couple things.

I don’t agree with doctors just throwing medication on people to “fix” things. Personally, I’ve had a long battle with anxiety and OCD and depression (as a result of the anxiety). While in 3rd grade I had to see a counselor because I couldn’t make friends like the other kids. In 9th grade, went to another counselor. In 12th grade, a psychologist (the person who ran a battery of tests to diagnose my “conditions”) strongly recommended medication as an option to my parents, but my parents flat out refused. I had wanted to try the meds, but at the time was only 17 and had to go with what they wanted. While in college, I got really bad and started to dabble with cutting. They were surface cuts and nothing terrible, but the fact that i was starting to move into this realm of releasing my anxiety and stress scared both me and my serious boyfriend at the time. I would lash out on him, or start crying, all for no reason. I was erratic. I ended up seeing my regular doctor and he put me on Paxil and recommended a therapist. I did both. The Paxil had side effects I hated, so he switched me over to Zoloft. At the end of the day, what really helped me to grow as a person was the therapist. She taught me ways to relieve my stress and manage it better when it did come on. I believe this related to the man in the article moving to yoga and a new diet to manage his mental illness. There is honestly something to be said for a natural approach to things. Ultimately I took myself off the meds because they made me feel completely sexless and did nothing for my OCD.

Long story short, based on my more mild mental illness, i would say that there are cases in which meds are truly necessary. I personally feel that I was helped more with talk therapy and life changes, but when I was feeling completely depressed and cutting myself, it was horrible. I don’t know that talk therapy and life modifications alone could help someone who is suicidal or bi-polar or schizophrenic. Again, not having those particular illnesses myself I can’t really be the judge of whats best or not best, but I can only speak from my experiences. Overly medicating and forcibly institutionalizing patients is NEVER an answer though.

12 Liza 5.8.2009 at 2:59 pm

. . . his half Native American ancestry evident in his dark hair and dark eyes.

Um, am I the only one who couldn’t get past this part of the first paragraph?

13 UnHinged Hips 5.8.2009 at 3:30 pm

My partner works in the mental health field, and there is a *lot* that needs to be fixed there. Hospitalization programs in particular tend to be horrific. There is no denying that.

Leaving depression aside, though, I’m hesitant to get behind the idea that people suffering from mental illness should always be the final arbiters of their own care. If someone is having a significant break with reality, for example, it is extremely hard to determine if they will be a danger to others. A woman locally committed suicide by drowning herself and her young daughter because she believed the environmental impact of their lives was too much. Speaking with plants sounds lovely until they convince you to do things that are dangerous to yourself and others.

I think there is a point where an inability to recognize consensual reality and to act in a manner consistent with it does justify taking away a degree of autonomy. But we unequivocally need a better system in place to do that because the one we have now is broken.

14 Bushfire 5.8.2009 at 3:43 pm

I agree, Liza. Why did they need to mention that he is a Native American? Would they have described the man’s round eyes and pale skin had he been caucasian?

I see this article as a general cry for better mental health care. Whether it’s individuals wanting to be on medication and not having access, or people wanting to be without medication and being denied that wish, we should be taking much better care of each other’s health. What is best for a person should be decided by the individual (unless they are a direct danger to other people) and a reasonable array of options should be accessible to the average person.

15 beylita 5.8.2009 at 3:46 pm

It’s not just a choice between crazy or no. Psych meds have some pretty hideous side effects. Diabetes and tardative dyskinesia, not to mention the truly horrifying withdrawl effects benzodiazepams can have if you are unable to get a refill. It’s not just about the madness as a gift framework. There’s a real need to calculate what you can deal with, and I’m upset this article doesn’t address that many mad pride people are rejecting things much worse than their creativity being hampered.

16 Liza 5.8.2009 at 4:06 pm

Yes, Bushfire. And the journalist implies that all people with Native American ancestry have brown hair and brown eyes, which is not true at all!

I hope I’m not derailing the discussion mods, this just bothered me a lot.

17 Amelia 5.8.2009 at 4:13 pm

I agree with everyone who said it’s extremely nuanced, and people ought to do what’s right for them. People need to be understanding on both sides. Psychiatry partisans need to stop saying “You MUST take medications and conform to our therapeutic model” and people like Icarus need to stop saying “If you take meds you’re repressing your true nature!” Some people respond well to medication and behavior modification, and they live happier and more fulfilling lives for it; some people are better off doing things without meds. Depends on the conditions, depends on the brain, depends on the life, and what you want out of it.

18 MaggieK 5.8.2009 at 4:32 pm

I have bipolar disorder, with mixed episodes, and I have seen both sides of the world of mental health treatment. For years I suffered from horrible medication side effects, therapists and psychiatrists who proved condescending beyond belief and didn’t believe me, and the like. But I was lucky enough to find a wonderful p-doc who has worked with me over the last three years until we’ve found a cocktail of medication that leaves me stable with relatively minimal effects.
So I can understand the desire to free oneself from the restraints of uncaring doctors and meds that leave you doped up, but I cannot imagine life without treatment. I would be dead by now if it weren’t for my care network, so perhaps I am too biased to give my opinion, but I firmly believe that medication and therapy is the best avenue for most mentally ill people to take.

19 CBrachyrhynchos 5.8.2009 at 5:01 pm

In general, I agree with a “pro-choice” approach.

But there is something I feel I really need to communicate. Taking meds for me isn’t about feeling happy, or content, or pleased. It’s not a cure. It is about controlling symptoms. I don’t get the manic 48-hour bursts of obsessive writing, but I also can complete a paragraph in under an hour. I’m not as energetic, but I don’t rub my hands bloody raw when something bad happens, or get ants under my skin. If I’m having a fear I know to be completely irrational, I can pick up a book and get past it.

20 piny 5.8.2009 at 5:05 pm

I don’t know if it makes sense to call the problem a choice between self-determination and cooperation with treating physicians. When patients feel that they have no autonomy or dignity, they’re less likely to be candid, less likely to seek help in crisis, less likely to describe their feelings and wants in nuanced terms. An adversarial relationship is not conducive to conscientious, individualized treatment.

It’s not just a choice between crazy or no. Psych meds have some pretty hideous side effects. Diabetes and tardative dyskinesia, not to mention the truly horrifying withdrawl effects benzodiazepams can have if you are unable to get a refill. It’s not just about the madness as a gift framework. There’s a real need to calculate what you can deal with, and I’m upset this article doesn’t address that many mad pride people are rejecting things much worse than their creativity being hampered.

And it’s not like most of these people are receiving heavy medication in a perfect system. They have sky-high medical bills, managed-care plans that may keep them from seeing their doctors regularly for updates, and any number of administrative barriers between them and actual care providers when they have concerns.

21 EKSwitaj 5.8.2009 at 5:12 pm

Persia, let’s take your cancer comparison and think about this way: sometimes when people have brain cancer, removing it means endangering certain creative or intellectual functions. Would you listen to someone who would rather shorten their life than risk losing, for example, their ability to use language? I would.

22 anonymous 5.8.2009 at 5:25 pm

I am an regular poster who is writing this anonymously.

I have a history of severe depression and suicide attempts and have been on and off medication at various points. I am currently NOT on anything only because I cannot afford either the meds or the treatment that should go along with them.

One thing that I really do feel has been addressed in the comments so far, is how much YOUR mental illness can affect the people you love. I’m sorry, but I have known too many people whose lives or livelihoods have been destroyed by people with severe mental illnesses. If you read domestic-abuse boards, you find a high prevalence of people in relationships with people with bipolar disorder or borderline personality disorder.

Borderline is particularly problematic. I personally have had the last five years of my life destroyed by someone with this and, from everything I have read, there is no such thing as a functioning unmedicated borderline.

So I guess my point is, yes, meds are given out too freely, and yes, many of them have horrendous side-effects, but for certain disorders, regardless of how you feel about yourself, you should take meds to protect the people around you. The guy in the article even says his relationships are “tumultous,” which makes me wonder how much pain he is causing others. I think it is extremely irresponsible and selfish to advance this as a “cause.”

23 anonymous 5.8.2009 at 5:30 pm

Sorry, I wanted to add that, after reading the comments, More carefully, I see that some people, including Talulah, did bring up this point.

24 William 5.8.2009 at 5:54 pm

I’m writing my dissertation on the ethical principle of autonomy, so I’m predisposed to supporting the Icarus mindset, although I’m coming at it from the opposite direction. For me, the problem is that in our society the mad are just about the only people, outside of children, who we tolerate overt and systematic oppression. Time and again the mad are given the message that they are allowed to exercise their rights only so long as they are willing to not exercise them.

The mad are in an interesting catch 22. On the one hand they are told that their condition is an illness that makes them incompetent, on the other they are told that they only way to prove that they are cured is to prove that they are competent. If you’re mad you can’t be trusted to make your decisions, and once you’re declared mad the only way to prove you can be trusted is to prove you aren’t mad. Its a impossible situation, and one that allows us to justify treating the mad as dangerous animals or untrustworthy children.

25 debbie 5.8.2009 at 6:04 pm

I understand that have people with untreated mental illnesses can be extremely difficult and painful. I have experienced this from both ends: as someone who has had friends/family/partners who are not seeking appropriate treatment (or cannot access it), or who don’t think they have a problem. Sometimes their behaviour has been abusive.

I have also been the person who has not been seeking treatment, or not seeking the treatment that others think is best for me. And I know that it was (and sometimes continues to be) very painful for my parents and my friends to watch me struggle with an anxiety disorder and related depression that has left me non-functional for months at a time, and continues to seriously impede my ability to lead a “normal” life.

But I cannot make my decisions about medication and therapy based on how hard it might be for my mother, or my friends. Even when they have the very best intentions. And I think we need to be honest about the fact that sometimes people want you to do things that make it easier for *them* that may not be in your best interests (even when they believe it is). If it were up to my mother, I would have dropped out of grad school and moved back in with her because she honestly believes that this was the best course of action. My refusal was very, very stressful for her – collateral damage because I trusted myself and insisted on maintaining my boundaries.

And, no this is not the same as BPD or schizophrenia (as an aside, I think it’s interesting that schizophrenia continues to be the boogyman of mental illnesses), but if you actually go to the Icarus’ project website (I had never visited it before), you will see that they emphasize wellness and self-care. These are not assholes saying “Throw away your meds! Fuck everyone else!” – and I have encountered those people before.

26 The Opoponax 5.8.2009 at 6:10 pm

I get it, and then I don’t.

On the one hand, I’m very aware of the way that the psychiatric industry has been used as a weapon in the past. I also value the idea that people should have agency in their lives in whatever way is possible, and firmly believe that we need to keep in mind that the people around us are human beings, and not animals to be drugged or locked up.

I also very much agree that the problem is largely with the system. There are probably a lot of people who could manage their conditions without meds in a utopia where mental health care was readily available to everyone, to mention just one drop in a huge bucket.

On the other hand, I was once sexually assaulted by someone who later excused it as part of “a manic streak”. Which, uhhhh, I feel for you, I really do, but sexual assault is not OK, even if you have a medical problem. And refusing to keep your medical problems under control in a way that causes you to hurt others is also not OK.

27 William 5.8.2009 at 6:16 pm

<blockquoteBecause I don’t believe a person who is depressed is capable of making hir own decisions about whether to end hir life. That takes away my friend’s agency and autonomy, and means ze’ll be involuntarily committed for at least a short period of time. But I think not doing that is wrong.

So your friend wants to die, and that is proof that they cannot possibly have the agency to make that choice? Thats a wonderful way of defining norms. The only way for someone to prove they’re qualified to make a decision about continuing their life is to make the choice that you would want them to make. Otherwise they need to be protected from themselves. By force.

And lets not fuck around here, force is what we mean. Involuntary commitment and involuntary medication is accomplished by force. I’ve seen it up close. Its armed police wielding batons and hand cuffs, its four point restraints, its three orderlies holding a patient face down in their own vomit while a nurse injects them with a drug that will leave them with tardive dyskinesia and ruin their ability to communicate with others, its a locked ward that smells of human feces and a shared room with someone who screams through the night. At the outside, its prison if you don’t obey.

Same here. And I can’t help but think– if you took the words ‘mental illness’ and substituted ‘cancer,’ how many people would think these people were worth listening to? Yeah, we don’t know the best way to treat cancer, and some cancers may not need to be treated, but holy shit, that doesn’t mean we should embrace it. Too many people are hurt.

The problem there is that cancer is a quantifiable disease. You can see a cancer, judge the damage it causes objectively. Mental illness is a theory, a label, a tag we apply to a certain way of being. For some people the experience is terrible, for others it is wonderful, for most it is a mixed bag. Cancer kills everyone who gets it and isn’t treated, madness kills some and makes others into a Van Gogh or a Hemingway. Some people don’t want to be normal, some savor their difference. Care should be available to those who are distressed and support for the rest.

Leaving depression aside, though, I’m hesitant to get behind the idea that people suffering from mental illness should always be the final arbiters of their own care. If someone is having a significant break with reality, for example, it is extremely hard to determine if they will be a danger to others.

Its not that difficult. Anyone who has worked closely with those who have been diagnoses with severe disorders eventually learns to understand them. Even the most floridly psychotic patients I’ve worked with make sense after awhile. If you listen for themes you can hear the potentially violent, the potentially suicidal. Still, they’re rare. The system we have restricts everyone in the name of sifting out a tiny handfull.

28 William 5.8.2009 at 6:18 pm

Borderline is particularly problematic. I personally have had the last five years of my life destroyed by someone with this and, from everything I have read, there is no such thing as a functioning unmedicated borderline.

You can’t really medicate Axis II disorders. Borderline is a problem of personality, and a pill can’t fix that. Sometimes long-term therapy can. Still, people with Axis II diagnoses aren’t really a part of this discussion.

29 bellareve 5.8.2009 at 6:35 pm

I was agreeing with everyone until I got to comment 22.

It’s a common misconception that mentally ill folks are abusive and dangerous to others. People who are suffering from mental disorders are much more likely to hurt themselves. The whole “harmful to others” accusation/assumption is used, again and again, to strip away the rights, privacy, and bodily autonomy of the mentally ill. It also erases the fact that plenty of abusive people can be found among the neurotypical population.

Also interesting that you bring up borderline personality disorder, because women with borderline are disproportionally likely to have been VICTIMS of abuse, particularly childhood sexual abuse. According to some feminist psychologists, borderline should more accurately be considered a variation of post traumatic stress disorder (PTSD), as it is so often a response to sexual violence.

Other feminists in and out of the psychiatric field critique the borderline diagnosis because it a) is far more often applied to women than men and b) pathologizes “unfeminine” behaviors such as rage, sexual “promiscuity,” defiance, etc. Women with bpd generally don’t conform the expected passive, female “sick role” and are thus labeled as difficult, stubborn & manipulative by doctors.

Another issue: “studies” have correlated homosexuality, bisexuality, and “disturbance of gender identity” with bpd, which makes me further suspicious. (A google search should bring this up)

I speak as someone who has been diagnosed with bipolar & borderline. (I’m also currently doing a research project on it)

For reading on this, see “Through the Looking Glass” by Dana Becker

30 anonymous 5.8.2009 at 6:43 pm

Still, people with Axis II diagnoses aren’t really a part of this discussion.

That was really dismissive of what I feel is a valid point. How do you know this isn’t treatable? What authority do you have to say that?

31 The Opoponax 5.8.2009 at 7:18 pm

It’s a common misconception that mentally ill folks are abusive and dangerous to others.

I’ll agree with you that one can’t make hard and fast generalizations, but as someone who has been on the receiving end of a mentally ill person who was abusive and dangerous to others, I’m sorry, but no. Just no.

32 BipolarGirl 5.8.2009 at 7:23 pm

This is a really tricky issue. I was involuntarily hospitalized during a psychotic break during a manic period. If not for the people who committed me against my will (and I was literally kicking and screaming the whole way), I would have died that night. Because of my experience, I have a strong appreciation for their ability to commit me involuntarily. (And can speak only for my experience – I recognize that it has been degrading and awful for others, Erika @9.)

The cancer/brain injury analogy is an interesting one, and I like EKSwitaj’s take @21. Some of my cognitive abilities are definitely impaired by the medication – when I was manic, I could stay up for days and the art and poetry I created was unlike anything I can produce now. I just can’t get my head in the same place. For me, though, those effects feel minimal compared to the abilities the medication has restored to me. My depression removed my ability to be interested in anything, to do anything. I think of my depressive periods almost as an absence of function or ability. I feel that the person I am when I’m depressed is much less authentically “me” than the person I am in with medication. And that’s why I choose to take it – which, as others have noted above, is a privileged choice to have available to me.

I think these movements and ideas have a lot more to offer, though, than just take meds/treatment or don’t. During a recent discussion on the vocabulary of disability, I said that I didn’t like the term ‘disability’ to describe myself because it focuses only on the abilities I lack (to regulate my moods without chemical support, basically) and entirely elides the enhanced, or extra, or bonus abilities conveyed by my bipolar. (Again, speaking only for myself – can’t say whether other people feel this way.) I prefer the terms “neurotypical” and “neuroatypical,” which is more of a descriptive than proscriptive definition. That kind of discussions and identification is, I think, part of these movements too, and more interesting to me than the “should people take psych meds” discussion.

I also think these movements and discussions are extremely applicable to Axis II diagnoses – the amorphous diagnostic criteria, the gender issues discussed by bellereve @29 all make it extremely necessary for people with that diagnosis to have autonomy and control over their own experiences and treatment, rather than having that dictated by a doctor who may be trying to cure them of being different than the ideal woman.

33 anonymous 5.8.2009 at 7:25 pm

Bellareve, I can understand your sensitivity to the issue. I know people can use mental issues as an excuse to marginalize or demonize others, but I stand by what I said. The abusive, manipulative liar I mentioned IS a woman and WAS abused, but that is not an excuse for her to ruin other people’s lives because she does not want to take meds or be under the care of a therapist or doctor. Look, I’ve read the books and other literature, but living with it is a whole different ballgame. I think it is the responsibility of an individual with severe bpd, bipolar, and the like to protect others if they have the means to do so.

Another issue: “studies” have correlated homosexuality, bisexuality, and “disturbance of gender identity” with bpd, which makes me further suspicious.

I think that those studies are probably leaving out the fact that there is a higher incidence of sexual abuse survivors in the queer community and that many survivors end up having psychological problems.

34 victoria 5.8.2009 at 7:29 pm

first of all, i’m glad this conversation is happening.

second, as a person who has dealt with mental illness in some form or another for most of my life, i would like to STRONGLY request that extra care be taken to make this comments section a safe space for us “mad” folks.

if you don’t have first hand experience with mental illness, please consider taking a step back to listen instead of comment. for the most part it looks like this has been happening so far, but i really want to emphasize the need for folks to be able to speak from their own experiences on this issue.

35 Lisa 5.8.2009 at 8:14 pm

One thing that I don’t think I’ve seen brought up is that refusal to take one’s meds can often be a part of mental illness. I realize this is a form of the same Catch-22 that William brought up, so I want to make it very clear that I’m not advocating diagnosis or mandatory treatment on that basis, just speaking from my own and familial experience.

When I’m not on my meds, I am not rational. I can fake it pretty well, so I generally am able to hide my messed-up thought processes from everyone else, but my judgment and decision-making are definitely affected. I’m not, personally, afraid of my medicine when I’m not on it – I’m just convinced it won’t do anything, because I believe a whole bunch of things that aren’t true when I’m off it. My mother, on the other hand, believes that her antidepressants will kill her – until she’s been on them for a while and she’s able to see that she wasn’t thinking rationally. But it’s understandably a little hard to convince her to take them again whenever she goes off them – and it was hard for me to get support from her when I decided to go back on the meds.

For both of us, not taking our medicine is, if not a symptom, then a side effect of our illnesses. Again, I’m not saying that this should be used to force or coerce people into taking the meds (and I realize that it has in the past and still does) – but it’s something to keep in mind, and consider approaching respectfully, if someone you know decides to discontinue their medication because they prefer their illness.

36 Chantal 5.8.2009 at 8:16 pm

Hi, I’m Bipolar I with Psychotic Features. I’m unmedicated.

I, too, went through an artsy-fuck period as a teenager of “OMG MENTAL ILLNESS IS SO BEAUTIFUL” while I was in my depressive stages, but that is distinctly different from how I feel once I grow up. Comparing adult attitudes to that is disrespectful and insulting, because you’re implying an immature lack of understanding.

I understand better than anyone what my condition requires. It requires that I be on my game at all times. It requires that I use the cognitive-behavioral techniques I learned. It requires that I am open to understanding and interpreting my own behavior for other people.

I’m not an immature idiot thinking that I only have a gift. Nor is anyone else I’ve met who has adopted my same outlook: that we have a unique disposition and part of us that needs care and cultivation.

Care and cultivation, here, refers to being able to limit the harmful effects and increase the positive effects. It means learning what triggers me and how to avoid it, and learning what ’sane’ means for me. It means taking a rational and disciplined stance to any psychotic symptoms I manifest, and it means making myself as comfortable as possible.

It means identifying what is important to me in my life and what I need to do, and working to make those happen.

At one point I was so sick that nobody thought I would amount to anything. I heard the doctor telling my parents that she didn’t know if I could go back to school. I heard them telling me what was best for me.

If I am angry, it is because I have been silenced and othered my entire life, and I have been told that I do not know what happens inside my own mind.

I am intelligent. I don’t mean to brag. It’s a statement of fact: I am intelligent and it shows through to the extent that people feel entirely disconnected from me. I am intelligent enough to understand what happens to myself.

Cognitive-behavioral therapy was the only thing that worked for me, because it focused on survival and it focused on empowerment. I tried to kill myself when I was told that I would never have a normal life, probably not even if I took these pills every day for the rest of my life. It was my only suicide attempt. I was 17.

I am 19 now. I am a successful student. I am aiming to become a virologist. I have not had a crippling episode in a year and a half.

My bipolar manifests itself as a part of who I am. I can be on fire and sparkling, or I can be distant and inside myself. I get wild impulses to do things, positive things, and I do them– right now, I am sculpting marzipan for my friends. Sometimes I feel gross and sick and incredibly nasty inside, and I can realize through that what I do not like and why I do not like it. Sometimes I get passionate rages that keep me up for days at a time.

Very few people in my life know that I am bipolar. It does not come up often. They know I am strange and intense and different and sometimes scary, but they see me as me, if they know me at all.

I joke about my “crazy time” with people I know understand. It’s not gone. It’s just something I can channel now, and deal with. I can use my rage and fear and sick-feelings and passion and love to do what I want to do with my life.

When I was on medication, it did not make me better. It made me emotionally flatline. It took meaning out of life, no matter what I tried. I felt glass walls in my head. I read everything I could and everything I read said that if I was on my own I would destroy myself or others.

I only recovered when I refused to believe that.

This is hard to explain to people who have not felt this, but I hope I have done a good job.

37 bellareve 5.8.2009 at 8:28 pm

victoria: yes, yes, yes!

Being affected by the actions of someone with mental illness does NOT give someone the same right to speak on this issue as the people who actually LIVE with these disorders and have been socially stigmatized, involuntarily hospitalized, etc.

An abuser is an abuser, and a liar is a liar. Whether or not that person is neurotypical really isn’t relevant to the discussion, just as their race, gender identity, or sexual orientation would not be relevant.

As a survivor myself, I would never dismiss or trivialize the fact that someone was abused. And it is always the fault of the abuser, no excuses.

However, I would argue that this has very little to do with how someone with mental illness chooses to treat/medicate/care for themselves, nor should it. Therapy and meds won’t turn an abusive asshole into an angel, or a kind partner.

38 Superla 5.8.2009 at 8:46 pm

I said I would not read, and yet here I am.

Honestly, I’m really annoyed with this post. Haven’t read all the comments yet, but I’m pretty sure I’m going to be annoyed with those, too.

Just going to say that it if you don’t know much about a topic rife with controversy and stigma, there are a thousand better ways to research it than offering up the comment section so that anyone who has ever known someone who’s all crazy and shit can voice their opinion on what’s best for them.

I mean, really? We’re really going to have a psychophobia 101 thread?

39 larkspur 5.8.2009 at 9:19 pm

This is an important discussion. But you know what? I don’t trust the “interesting article” from Newsweek.

I recently read a frustrating book by Frank Schaeffer entitled Crazy For God. He discusses his life as the son of some pretty influential Christian fundamentalists, and how he moved away from some of those beliefs. But on one topic he hasn’t budged: abortion is always murder and always wrong. It’s what he believes. But one of the citations he uses to support his belief that abortion cannot be justified is a newspaper article he read entitled “Abortion Chic”, in which the author relates a so-called trend of smart, non-poor, independent women getting pregnant and having abortions for dramatic effect or to impress their boyfriends or whatever. Schaeffer also tells of all the young women who visited his parents’ Christian retreat in the late 1960s and talked breezily about their multiple abortions, blah blah blah, and yet in the US, that was before Roe v. Wade, and I remember pregnancy was the worst thing that could happen, and no one I ever met had had multiple abortions. In other words, Schaeffer’s entitled to his beliefs, but his evidence is shoddy.

So I will take my metaphorical medicine if it’s warranted, but is “mad pride” a real thing, or is it a journalistic hyperbole?

For the record, I have been taking three different anti-depressants for years now, for treatment of severe and disabling depression. I am carrying 30 pounds I can’t seem to lose, I wonder what weird things are happening to my body long-term, and yes, paying for these drugs is always a thrills-and-chills ride, and also I would probably be dead without them.

Now I kind of feel like researching borderline personality disorder. Some 35 years ago, one (1) doctor said I had it. He was wrong, I’m pretty damn sure of it.

40 GallingGalla 5.8.2009 at 9:38 pm

yno, the commenters who are saying that my depression and anxiety are some kind of “danger” to others (so oh so utterly dangerous that my roomate did not even know about my anxiety/depression until i told her, despite the fact that i had cut myself, so well did i insulate her from my issues) and demanding that i take my medications, you are putting me in a trap. i would love to do so. however, i do not have health insurance. i cannot afford health insurance. i cannot afford to pay a psych $300 per session to straighten my not-particularly-effective meds, let alone find a psych who will respect my gender identity and not treat my transness as a pathology. the only clinic in the city that knows how to treat psychiatric conditions in the glbt population has such a long waiting list that they won’t even put my name on it. and even if i can get an affordable psych, how about meds that often cost $200 or more a month.

so yeah, maybe you can fund affordable treatment for me and find me a psych who considers trans women to be human beings rather than freaks, then *maybe* i’ll let you tell me when i should take my meds.

i’m getting damned tired of being treated as less than human and a danger to society because i have anxiety / depression, am an aspie, and am a trans woman. and this thread isn’t doing a hell of a lot to change that.

41 bellareve 5.8.2009 at 9:53 pm

GallingGalla – yep, agreed. I didn’t even mention the issue of not being able to afford to “choose” any type of treatment in the first place.

The “danger to to others” theme is pissing me off. Reminds me of the same accusations historically thrown at glbt people. (Families! Children! Bathrooms! What About My Rights??? Who will protect MEEEEEE)

42 Cara 5.8.2009 at 9:58 pm

I, too, went through an artsy-fuck period as a teenager of “OMG MENTAL ILLNESS IS SO BEAUTIFUL” while I was in my depressive stages, but that is distinctly different from how I feel once I grow up. Comparing adult attitudes to that is disrespectful and insulting, because you’re implying an immature lack of understanding.

Chantal — if you’re referring to my comment, I will just say that I sincerely apologize if that’s how it came off. It wasn’t at all what I was trying to get across.

Further, I will note that I stressed more than once that I was speaking only for myself and could not speak about anyone else’s condition. Regardless of whether they have one similar to mine or completely different. And I think that part is an idea that quite a few people on this thread could sure as hell stand to take up.

43 Caty Simon 5.8.2009 at 10:08 pm

Antidepressants *could* potentially kill your mother through akathesia. Ritalin stunts children’s growth and has no proven long term efficacy. The new atypical atipsychotics cause adult onset diabetes, and the makers of one of them were found out through a NY TIMES expose to have known about it for years w/o admitting to it. The old antipsychotics caused permanent neurological damage through tartive dyskenesia.
Drug research studies are finally consistently being linked with pharmaceutical funding conflicts of interests.
Knowing all that, why have so many here allowed themselves to be convinced the emperor (or the sixth or seventh largest industry in the world) is wearing such dandy clothes or making such magic medicine?
Have any of you good feminists read Phyliss Chesler’s _Women and Madness_ or Paula Kaplan’s “They Say You’re Crazy” (about how these supposedly scientifically valid diseases are created by the APA, a committee of white men, voting to agree they exist on racist and sexist lines?)
Feministe usually is so right on, too…

44 debbie 5.8.2009 at 10:11 pm

I hear you GallingGalla and others who are feeling hurt by some of these comments. This thread had me in tears earlier – the idea that my loved ones are collateral damage to my illness is really, really upsetting.

The reality is that finding (and paying for!) decent mental health care is impossible, even for those who are privileged (I include myself in that category). I live in the magical land of socialized medicine, and was getting psych prescriptions filled at walk-in clinics, and eventually the university health centre when I went back to school. I finally got to see two decent psychopharmacologists after the first was convinced she should see me because I was an “interesting case” as my anxiety does not respond to the usual drugs, and the second after spending 8 months on a waiting list. And I’m still not satisfied with the combination of meds I’m taking, or with the care I’m getting.

I get why people don’t want to see shitty doctors and therapists who don’t listen to us because we’re crazy after all and we couldn’t possibly know anything about ourselves and our brains, and if you’re trans, queer, poor, a person of colour, basically don’t think you’re human. And then factor in the cost, the side effects, and so on. For some people, refusing treatment may be a manifestation of their illness, for others it’s a matter of survival.

45 debbie 5.8.2009 at 10:12 pm

And of course it was only a matter of time before someone showed up to tell us how stupid and deluded some of us are for taking medication in the first place. Nice.

46 Superla 5.8.2009 at 10:18 pm

I think it’s interesting how many of the TAC and NAMI memes have shown up in this thread: Crazy people don’t know they’re crazy; crazy people are a danger to others; families are burdened by their crazy loved ones; crazy people are a group unto themselves, separate from Teh Normals; crazy people don’t know what’s best for themselves (unless they’re taking their meds).

Those who don’t know who TAC and NAMI are, find out because they are defining the terms of this conversation whether we recognize it or not.

And no, I’m not paranoid today.

47 Laughingrat 5.8.2009 at 10:37 pm

I think that until we’re free of patriarchy, we won’t be able–culturally, I mean–to handle mental illness in a compassionate, objective manner free from assumptions and judgments, any more than we can be objective and compassionate in regards to behavioral psych, biology, religion, or any other topic that has to do with human beings and their welfare. So much of what we know to be true is twisted and colored by assumptions; even scientific research gets twisted around that way, because the persons executing and interpreting it are part of the patriarchy like everyone else.

What I’m trying to say is that the article is interesting, and I’m glad people are discussing mental illness and the folks who live with it, but none of our conclusions mean squat at this point. The best we can hope for is to come somewhere near the truth, and to be as compassionate and aware as we possibly can under the circumstances.

48 Lisa 5.8.2009 at 10:51 pm

Caty Simon: Yes, antidepressants have an extremely small chance of killing my mother. You know what has a much larger chance of doing it? When she refuses to get basic medical treatment for illnesses and injuries (up to and including, so far, fractured vertebrae in her back that made her nearly incapable of walking). When she has panic attacks while driving, particularly on freeways, which are a particular trigger for her. When she refuses to take other medications that are vital to her life and health, because this week she’s decided they’re poison, despite the fact that she’s been taking them for years with no ill effects.

I’m not talking about a rational assessment of risk, here, and frankly I find your implication that I’m not aware of the potential side effects of these drugs, and your assumption that you know my family situation at all a little insulting.

49 Meowser 5.8.2009 at 11:00 pm

I wish I could just chuck my meds in the garbage and never have to take them again. I really do. I wish they didn’t work. I wish something else out of the 100,000 other things I had tried ever did. I wish there was some sugar-pill experiment they could do with me that actually worked. I would like not to have to sleep 12 hours a night unless I also take a stimulant. I would like not to have my metabolism toyed with as if by poo-flinging monkeys. And when I say “work,” I mean that I can actually be trusted now to have a medicine chest full of pills and not have to worry that I’ll give in to self-loathing and swallow them all. I see no “beauty” in what I, personally, was suffering. It SUCKED. Hard.

That said, though, I don’t favor a one-size-fits-all approach to mental health issues at all. For some people, medications are exacerbative rather than helpful, or don’t do anything whatsoever. And forced institutionalization and forced drugging, especially, are horrible; if someone tells you that every (for example) SSRI ze’s ever taken has given them tongue spasms, you should assume it’s true and not a delusion, until you have sufficient evidence to the contrary.

Here’s the thing about instutitionalization, though, that a lot of people don’t realize. In most places, at least in the U.S., it’s very, very difficult to get more than a 72-hour psych hold on anyone, even if someone has actually threatened to kill hirself or someone else; you need overwhelming evidence that the threat has not passed during the 72 hours. Three days, though, is enough time to give someone drugs or other treatments that stand to make things worse instead of better. There doesn’t seem to be any question that people who are violent need a different kind of attention from people who are not, but that’s true of people without diagnosable mental illnesses who are violent, also.

50 Chantal 5.8.2009 at 11:27 pm

Cara, I don’t think you were as guilty of it as the people who posted agreeing with you and expressing their concern (gee, thanks) that individuals with mental illnesses were incapable of understanding the limitations of their condition. It’s not as bad coming from you because you have depression, which at least puts you as more of an ‘insider’ than people with no inside knowledge talking about how individuals with bipolar disorder, schizophrenia, etc., cannot make informed and educated choices about their treatment and their health.

51 Chantal 5.8.2009 at 11:38 pm

Meowser,

I really appreciate the individualist approach in your post. I agree with you wholeheartedly.

But with regards to institutionalization: Even if it’s for three days, institutionalization carries with it such a strong social stigma that even one episode of institutionalization can damage your job and/or education. Some universities will put students who are institutionalized, even short-term, on indefinite forced medical leave; I know people who have been passed over for promotions, or otherwise discriminated against, because of their mental health history.

52 Salome 5.8.2009 at 11:46 pm

I guess I see this kind of like I see the fat-acceptable movement – it’s a great thing, but only to an extent. I think that getting rid of the stigma associated with mental illness is great, and I think that someone needs to say that certain meds don’t work for everyone, and that pills like Prozac aren’t “miracle drugs” and they do have adverse effects for some people. Certainly, it worries me how pill-popping-obsessed our culture is, how pills are seen as the answer to everything – it worries me as someone who, while not diagnosed officially with any mental illness, has a lot of personality traits (introversion, most of the symptoms of but no official diagnosis of Aspberger’s syndrome) that are seen as undesirable, if my personality will be seen as a mental illness one day to be “cured” with a pill.

At the same time, as pointed out above, we forget that some of these mental illnesses do drive people to suicide or even just interfere with their daily lives. Just because Icarus and the other “mad pride” people are able to go fine without pills, doesn’t mean that everyone has the same reaction they do. I know some people who are bipolar whose lives have been enriched so much by being able to control their symptoms with prescription drugs.

Anyways, I wanted to explain my analogy to fat acceptance (before anyone objects) – I’m overweight, and I’ve found the idea of fat acceptance rather empowering. No one should feel “shame” for being overweight or obese. The fact that our culture stigmatized overweight and obese people, that the media and the fashion industry acts like they don’t exist, is completely wrong. However, there is an obvious health risk associated with obesity, and the idea of someone who is severely obese and at risk for heart disease, diabetes, etc. getting the idea to keep eating the way they do because it’s only stupid society’s closedmindedness that believes that obesity is unhealthy is really quite troubling. Of course, it is annoying how many people outright dismiss fat-acceptance on that idea while failing to see how our culture’s skinny worship promotes the opposite effect (women not realizing that it’s bad to be unhealthily skinny and developing eating disorders). But in the end, these things should be about getting people to accept their bodies the way they are – not promoting self-destructive behavior such as eating processed foods all the time.

I hope I articulated that right, and I just wanted to let anyone know if I accidentally offended them, I meant absolutely no harm or insult :)

53 William 5.8.2009 at 11:47 pm

That was really dismissive of what I feel is a valid point. How do you know this isn’t treatable? What authority do you have to say that?

Well, I’ve got advanced training and a Master’s in Clinical Psychology. I’m towards the end of an APA accredited doctoral program. I’ve worked with a number of Axis II patients, including several people diagnosed with Borderline Personality Disorder, and I’m familiar with both the current state of psychotherapy and the current medication options available. Personality disorders (Axis II disorders like Borderline Personality Disorder) don’t respond to medication, they don’t even tend to respond particularly well to therapy. How to deal with people who have Axis II diagnoses is kind of a hot topic in clinical psychology.

I’m sorry if you’ve had bad experiences, but your negative experiences aren’t justification for trampling on the human rights of whole groups of people. That is especially true when people are assigned to these classes based upon social norms and expectations. The number of false diagnoses of Axis II disorders (and major Axis I disorders) amongst women, people of color, the GLBTQ community is stunning though somewhat less so when you realize just how often those kinds of diagnoses are simply used as justification for oppression.

54 William 5.9.2009 at 12:02 am

Hey, Caty, how about you focus less on telling people how they should manage their own lives and a little bit more on empowering them to do it themselves? I’m pretty anti medication (both as a provider and as a patient) but its arrogant to assume that an option that you feel passionate about is an option for everyone. This isn’t a battle for finding the Right Option, its a battle for allowing people to find their own.

Those who don’t know who TAC and NAMI are, find out because they are defining the terms of this conversation whether we recognize it or not.

And no, I’m not paranoid today.

Heh…I hadn’t noticed that until you pointed it out. Good call.

55 chava 5.9.2009 at 12:21 am

I wanted to say that as someone who was raised Scientologist, Caty’s comment strikes a particularly nasty chord. No shit there are problems with these drugs and they need to be handled carefully. But I imagine most people on this thread already know that, having taken them–and assuming otherwise is just insulting.

(for anyone living in a shoebox: Scn is about the most ableist religion you could imagine, but they truly go off the deep end with mental illness).

Second, I know this thread is not the place for it, but it would be great at some point to have a thread for the loved ones of those with mental illness. It would give a space for loved ones to talk without feeling as though they are being a burden/making others upset. I was raised by a single mom with a physical disability, unmedicated, with paranoid delusions, and delusions…well, just delusions. I’m not enough of an expert to give a diagnosis. Obviously it’s harder for her than for me, but sometimes it would be nice to have a space to talk about it without others saying “Oh, but you think it is all about YOU!” Thanks, we get that everywhere else, too, you aren’t making a grand revelation.

56 Meowser 5.9.2009 at 1:06 am

Salome, I used to think the same things about fat that you did. Know what changed my way of thinking? Being on psych meds that increased my body weight by 50%.

In doing so, I realized that weight is not unlike income; even if you could prove that it’s “better” for one’s health to be a millionaire than to make minimum wage, that’s not very useful information for minimum-wage earners, most of whom will never become millionaires no matter how hard they work or how dutifully they set goals and visualize. Before, I bought into the personal-size-is-a-matter-of-personal choice meme; now I know that the “choice” between not taking the drugs and staying a size 10 and risking imminent demise, and taking them and becoming a size 20, wasn’t much choice at all, really.

(And I’ll stop there before I go too far off topic.)

57 Chantal 5.9.2009 at 1:27 am

chava, thanks for mentioning that. As a scientology critic, I was noticing some similar chords here and there. And yeah, scientology is so incredibly ableist: if the tech isn’t making you better, it’s your fault because you are applying it wrong.

For the record, I’m not anti-medication. It doesn’t work for me. It didn’t work for me. I don’t feel like I want to go down fifteen rabbit holes in order to maybe find an answer and maybe not. I’ve found my way, and I wish people would stop treating me like I’m a child or a fool.

58 akeeyu 5.9.2009 at 1:49 am

Oh, goody.

I was afraid there wouldn’t be any comments along the lines of “…but I know this one bipolar and s/he was TOTALLY unable to function/daaaaangerous/suicidal/attacky/OMGcrazy! and Those People Should Take Their Medication, but I see plenty of people already have that covered.

Thanks for continuing the stigma and making my life harder!

59 anonymous 5.9.2009 at 2:15 am

I’m sorry if you’ve had bad experiences, but your negative experiences aren’t justification for trampling on the human rights of whole groups of people.

My original point was this:

…yes, meds are given out too freely, and yes, many of them have horrendous side-effects, but for certain disorders, regardless of how you feel about yourself, you should take meds to protect the people around you. The guy in the article even says his relationships are “tumultous,” which makes me wonder how much pain he is causing others. I think it is extremely irresponsible and selfish to advance this as a “cause.”

How is that “trampling on anyone’s rights? I never said EVERYONE should be medicated. I know meds don’t work for everyone and I know people are incorrectly or falsely diagnosed for a number of reasons. But I think it’s interesting how, in a discussion like this one, the point of view of anyone affected by the mental illness of someone else is silenced and invalidated.

I also think its interesting how many assumptions were made such as:

Being affected by the actions of someone with mental illness does NOT give someone the same right to speak on this issue as the people who actually LIVE with these disorders and have been socially stigmatized, involuntarily hospitalized, etc.

Wow. So I have no right to speak? Nice. Sorry, but there are two sides to this coin. Not only that, I did mention in my first post that I have had my own problems with mental illness, so I do understand the stigma.

60 flawedplan 5.9.2009 at 2:20 am

I mean, really? We’re really going to have a psychophobia 101 thread?

No shit, it appears the idea here was to serve ‘em up for public consumption. And revel in your ignorance.
Like the pre-civil rights South. But more unbearable, since y’all are supposed to be fighting the good fight.

Re-boot.

61 BipolarGirl 5.9.2009 at 2:42 am

I agree that this post and thread could have been handled better. (I’m too tired to talk more about that, but I hope there’s further discussion of this.) But I also think that there were people in this thread talking about their experiences and thoughts, working on some of the 101 stuff, and raising other issues and ideas. To dismiss the entire thread as a waste feels dismissive of those who were engaging in discussion outside of the psychophobia rehash.

62 akeeyu 5.9.2009 at 3:36 am

I didn’t dismiss the entire thread. I think there were some very interesting and valuable comments, and plenty of people I would totally like to take out for coffee, my treat.

On the other hand, comments didn’t even get to double digits without second hand accounts of Manic Depression and what THOSE PEOPLE are like, and that is so depressing. Not the chemical kind of depression, the “Oh, come on, really?” kind.

I get really tired of hearing what THOSE PEOPLE are like.

Incidentally, why is it considered socially acceptable for Crazy people to die from their meds, but not to kill themselves?

When I started my most recent med (which, full disclosure? This stuff is seriously awesome) I was told that the only significant side effect was a very rare but also very FATAL skin condition upon commencement of treatment.

How crazy does someone have to be to say “Wow, fatal side effects? Sign me up!”? Don’t get me wrong, I LOVE meds, but these things aren’t tic tacs. The whole “We must medicate them for their own good” bit tends to hit me wrong.

63 rengeko 5.9.2009 at 5:24 am

i was diagnosed with bipolar disorder a few years ago, and have been taking minimal medication. i do not want to take any of it. unfortunately, it’s a choice between being able to survive and not. not that i would be suicidal without, but i cannot function enough to keep a job. i take depakote for mood stabilisation and prozac which tends to reduce my anger problems. i also get depo provera shots every 3 months to prevent PMS, which is crippling. even with all of this, i can barely manage to hold on to a job. i also have gained a great deal of weight, but again-how much choice? be fat and be able to eat or be thin and starve? i don’t know what the answer to any of it is-but i do manage my own illness, i make the decisions. i am for that for anyone who is able. those who are unable should still have as much autonomy as is possible. regarding what william said about personality disorders, i have dealt with people who were borderline, and i also agree that there are limited treatment options. as always, there is no ideal.

64 Natalia 5.9.2009 at 6:06 am

“Icarus” is an interesting choice for a name – sad and beautiful.

I think this conversation is important. I also think it’s pretty impossible to avoid having our feelings hurt here -because it’s just one of those topics that cuts close to the heart.

I suffer from depression and severe anxiety – and can specifically relate to what Cara was talking about above.

It’s hard to talk about these things, because someone is always waiting to brand you as less-than. You worry about potential employers deeming you “damaged goods,” etc. You worry you might lose friends.

But I think it’s an important topic, and if more of us reject the stigma – maybe some good can come from this.

On the other hand, I wanted to address what bellareve said upthread:

An abuser is an abuser, and a liar is a liar. Whether or not that person is neurotypical really isn’t relevant to the discussion, just as their race, gender identity, or sexual orientation would not be relevant.

I don’t know about that, because some people change very radically when they don’t manage their condition. This is an ongoing situation in my family, involving two marriages. In one case, the husband became convinced that treatment was holding him back (he’s an Afghan war vet who already suffered from mental illness before his PTSD, so you can imagine what it’s like for him). What worked when he was younger wasn’t working anymore, and he made the decision to abandon all treatment altogether.

He became so violent that the marriage broke up. He is not himself, he is not in control – and what’s tragic about it is that there are flashes of the old him sometimes. While all of this is happening, another member of the family is also dealing with an ex husband who has developed a mental illness and will not get treatment. There’s threats, police involvement, etc. Some of us have tried to say “I’ve been there, I think I can understand some aspects of what you’re going through. Let me help.” But if someone chooses not to listen, you have to make decisions such as – “Can I watch this man, whom I still love, throw my child against a wall in a fit of rage he will later regret?”

It isn’t anyone’s fault either. That’s just life – people don’t ask to be sent to Afghanistan, they don’t ask to inherit their father’s condition. You just have to pick up the pieces as best as you can.

I don’t know how to talk about this without avoiding stigma – stigma that’s cast on a great many people, including myself. But I can’t minimize what has been happening in my family either.

I think the bottom line is – no situation is the same, but there is one common denominator: either you want to be part of a society or a family, or you do not. I think the decision does not hinge on eccentric behaviour either. I think eccentric and dangerous often have little in common.

65 GallingGalla 5.9.2009 at 7:01 am

Caty Simon@43 well gee then caty, then mebbe i should just throw my meds in the trash. and then i will go from having barely-manageable depression and anxiety to having both become so severe that in a month, i won’t be around to read your fucking ableist comments.

i know what the goddamned risks and side effects of medication are. and they are preferable to suicide, so shut you goddamned mouth.

66 lethe 5.9.2009 at 8:23 am

Victoria said “second, as a person who has dealt with mental illness in some form or another for most of my life, i would like to STRONGLY request that extra care be taken to make this comments section a safe space for us “mad” folks.”

I had my first psychotic episode in my early twenties. Terrifying. But also terrifying for those who cared about me. Shoot me down if you like, but I think meaningful dialogue between mentally ill folks and those who have been on the outside looking in ( family and friends) is invaluable. Because psychosis wasn’t safe. And this article is something that we should definitely be discussing with those around us who may have to second guess whether or not we are making decisions that might hurt or damage us. My sister ( who cared for me) said throughout the whole thing she was being called on to make decisions for me and she had no idea what I wanted because I could not communicate meaningfully with her. ( word salad) I think that not only has she a right to speak, but that her experiences of mental illness are as valid as mine. There were times she put her safety at risk for me ( removing me from a predator in a pub, he punched her in the face.) These are the people to who we are never ‘less than’. And they might not have the disease but they certainly suffer from its effects.

67 Anon (for this one) 5.9.2009 at 8:23 am

An intensely personal experience with mental illness:

While my father was on a business trip for a few weeks, as a teenager I woke up to find my mom standing over me with a chef’s knife. She had already cut herself across her forearms and when she saw I was awake she said “I got this, but I wasn’t sure what else I should do with it.” I bandaged her injuries and took her to be involuntarily committed to the treatment center where she had been receiving outpatient care. While she was outpatient, there were many times that she refused to take her medication. The stuff is horrible. It made her sleep 14 hours a day and she couldn’t carry on a conversation. But when she refused to bath because she thought knives would come out of the faucet….I crushed the medication into what little food she would eat. When I got scared that she would hurt me (accidentally) or hurt herself (more), I committed her. The story gets both more bleak and more fortunate. After two years of involuntary commitment, trying every type of anti-psychotic med there was and even (goddess forgive us for authorizing it) ECT, they said she would have to be permanently institutionalized because every treatment they had failed. Until a new doctor giving a last and final consult noticed that the admitting doctor at the clinic had misread her thyroid test. She had Hashimotos not uncategorized psychosis. Today she’s as fine as someone who went through 3 years of hell can be.

Some mental illnesses are more serious than others. I think we should give most people the benefit of the doubt about their medical choices particularly given that doctors can be wrong….very, very wrong. But when someone has a psychotic break and is standing over you with a knife and blood running down her fingers…I think that person may not be able to make choices for herself.

I don’t think this is that fine a line.

68 SnowdropExplodes 5.9.2009 at 8:47 am

All I know is that, unmedicated, I really was a danger to myself and others.

It’s hard to reach any other conclusion when I came close to burning down my place of work (that was the reason I went to my GP and got prescribed SSRI medication, which WORKS FOR ME). The only reason I haven’t been institutionalised at any point in my life is that I managed to keep the most extreme moments of madness a secret when they were happening, and dealt sometimes.

Because I don’t believe a person who is depressed is capable of making hir own decisions about whether to end hir life. That takes away my friend’s agency and autonomy, and means ze’ll be involuntarily committed for at least a short period of time. But I think not doing that is wrong.

So your friend wants to die, and that is proof that they cannot possibly have the agency to make that choice? Thats a wonderful way of defining norms.

This spectacularly misses the point. It isn’t that decision itself that proves the incompetence, it’s knowledge of a pre-existing condition prior to the attempt that implies that the decision may not be competent.

As someone speaking as an expert in my own mind, I can tell you that definitely, when I was severely depressed, I was not competent to make decisions about ending my own life, because those decisions were based on completely FUBAR data about my life. That’s one of the big things about what depression does to people, see? It fucks up your ability to interpret what the world is actually like and what your own value is in that world. This can lead to ill-considered and ill-informed decisions about whether or not to end one’s life – or indeed, about whether or not to burn down my place of work, or whether or not to walk 7 miles in bare feet in the dark, or any number of other seriously unwise things that I’ve done thanks to severe depression.

If I hadn’t been aware of that fact when I was actually having suicidal episodes, then people could have just said “Oh, he’s made his own decision, we shouldn’t interfere”. And then I would have died and that would have been the end of what could still turn out to be a pretty good life for me. Thankfully, I was aware and didn’t act on the impulses but was able to take action myself to get the medication I clearly needed; I am only just coming off the meds now (very slowly – the first dosage reduction caused a very distinct “wobble” and I took the decision not to proceed with the next reduction as planned, but keep it at the same level).

On side-effects: ones that I have experienced include weight-gain and finding it much harder to achieve orgasm; early on I experienced some paranoid hallucinations including large spiders and the conviction that people were putting catchwires at neck height to catch me (those, thankfully, stopped happening after the first few weeks on the meds).

Finally, I noticed that people have criticised the “loved-ones” post, so I want to be clear about why I mentioned Julie (incidentally, I should have said earlier, she has given me permission to discuss openly all these issues surrounding her mental health treatment so I am not breaking her privacy here by relating this).

I mentioned Julie because I was particularly wanting to be able to talk about how I was close to her while she was involuntarily treated. I saw at one remove her clear distress and humiliation, and how a great deal of the time during the early weeks of her being held, she felt as though control over her mind and body were being wrested from her. Because she was not restrained physically, she at one stage walked out of the institution where she was being treated and came close to throwing herself under a bus. But I also saw at one remove what the effects were when she refused to take the medication they prescribed for her (again, she was not physically forced to take the meds): I seriously believe that my support (usually, alas, only at the end of a telephone line or internet connection) was strongly instrumental in keeping her from losing control over herself completely. Her decisions to stop taking the medications, I believe to have been influenced by her BPD but I supported her until it became clear that the effects of not taking them were serious enough (including actually making the distress worse, not better!) that the price of taking them had to be better. Her clear distress at the effects of the medication was genuine, but her reaction to that distress, and the level of that distress, were influenced by the tumult in her brain so that her decision could not be taken as fully competent. My role (again, on the end of the telephone) was to help her deal with that distress, and let her pour it onto me instead of onto herself. By being someone whose judgement she trusted, and by being able to detect (even at the end of a phone line – her voice was very expressive in that time of how her emotions were coping) that the meds really were having a beneficial effect, and talking her through the ways in which they were helping. And, just to be clear, I was always on her side, felt the same distress as she did over the effects of the medication (to the point that my parents were having to talk me down from a strongly militant stance at one point!) and always felt that they were using them in part as a chemical truncheon to try to stop her being “awkward” (Julie is a very forthright woman!). I wish I could have done more to help her, to get the chemical truncheon element of the prescriptions removed sooner, to be physically there more often, and so on, but I did all that I could (and more – the trip I did make to see her cost more money than I could afford).

As I wrote before, I strongly believe that medication should be the absolute last resort, and the medical community’s tendency is to use them as the first answer to any variant mental conditions (including my GP – as I mentioned before, I chose not to take meds the first time around, but his first response was to prescribe them; the second time around, it was my choice to go with the meds and that was why I went to him). For Julie and me, we did actually need that last resort. Thankfully, for my mother, talk therapy and a 6 month medical leave from work was enough (she soon afterwards took a different job elsewhere, which has also helped immensely).

There does need to be a sea change in the way that mental health issues are handled. As I said in my earlier comment, I am absolutely for trusting PwMHC to know their own minds and be able to make their own decisions as much as possible. I am against medication except as a last resort (but then, I have a friend who swears by them and always says “give me the pills to make it better!” so that’s her free choice too). However, I am also (acutely and painfully, from personal experience) aware that sometimes that can’t work. Julie now is competent to make her own decisions about her medication because a) she knows what works for her and b) she knows what the costs and benefits are of each course of action. This is my competency too, in making decisions about my medication. Ideally, everyone should have that same competency as a matter of course. Unfortunately, as many have outlined here, sometimes it can take years to find what works – and sometimes, nothing does. For that, we need the support and agency to find non-medical solutions as the first (and preferably only) resort, and even in the socialised healthcare system in the UK, talk therapy is very hard to come by even though it’s by far the best option. In some ways, my monthly 15 minute GP appointments for repeat prescriptions on my meds have filled that role to some extent.

69 SnowdropExplodes 5.9.2009 at 9:12 am

What lethe said.

Also, what Natalia said, to which I would like to add this:

From my own experience, when I am in the depths of a severe depressive episode, a lot of my ability to empathise with others goes out of the window – I become very selfish and along with my decrease in respect for myself, there is a corresponding decrease in my respect for others. Thus, the arson attempt in my other recent post (which is currently in moderation). Unmedicated severely depressed me is a hideous monster potentially capable of some really nasty things as my self-destructive urges are turned outwards and targeted at other people rather than myself. And that is scary and bad, and it is most definitely not who I am at heart. In fact, I have had to build mental pathways where when violence threatens due to my depression, I have an automatic response to turn and walk away (that’s actually what triggered the 7-mile barefoot walk mentioned in my other recent post) just to cope with this.

Just as some people self-harm due to mental health conditions, I have a tendency to other-harm when I am in the depths of depression. I am not that person when I am doing well. It’s a complete break from who I am and how I identify. But it is there.

70 The Opoponax 5.9.2009 at 9:45 am

Bellareve, I’d like to respond to your comment #37, because I feel that it was in a lot of ways directed at me.

When someone hurts someone else (and I mean HURTS THEM, not inconvenience or narcissistic whiny me-me-me ‘hurt’), and then justifies what they did with, “I was going through a manic period” or “I wasn’t taking my meds”, then it’s pretty likely that the person who was hurt is going to take away from that interaction some unsavory ideas about untreated mental illness.

Obviously you, others in this thread, and other people with bipolar or other mental illnesses are not the person who did that to me. But the bottom line is that it’s a double edged sword. If one wants to be seen as someone having full agency, one had best not blame their actions on their health problems.

71 chava 5.9.2009 at 10:00 am

@ Anon for this one:

No, it’s not a fine line. You did the right thing, even though it must feel horrible every day.

72 Anonymous 5.9.2009 at 10:21 am

The essence of prejudice is to generalize from your experience from one person who hurt you and become intolerant and other everyone else in that group for the actions of one. @Opoponax. I am the victim of domestic violence in my childhood, in my adulthood and of sexual assault in a psychiatric hospital. I have PTSD and DID and no, I really don’t care if you believe in DID or not or want your opinion on whether it exists or not unless you are a DID professional. I believe my DID is both trauma caused and genetic, how’s that for not politically correct? And there is no medication that works for me that doesn’t cause medical damage other than benzos which are now under attack by both the psychiatric and Pharma establishments AND the Will Hall types of this world. I am constantly put in a double bind which isn’t exactly mentally healthy for me. I am withdrawing from all mental health advocacy because of this peers are better than therapists b.s. It’s not black and white. Some peers are wonderful, some have no training, no clue and shouldn’t be allowed to work with people with mental illness just as many MH professionals shouldn’t be allowed to work with people with mental illness. I’m now not even supposed to use the word mental illnesss nor psychiatric disability, I am supposed to pretend that it’s all made up by some of these groups. On the other hand, the powers that be who are writing the new DSM are going to take DID out of the next DSM, in my opinion because there is no drug for it, just a hell of a lot of work in therapy by a very skilled professional. No money to be made in that. Very few people have access to therapy anymore, it’s once again become the luxury of the rich. Thank God for Medicare and the money to pay for secondary insurance. I do not tolerate bad behavior by anyone, well that’s not true, I’m just beginning to stop tolerating bad behavior towards me finally at my age, but guess what? I’m now being abused by a medical system that marginalizes me, yells at me, won’t listen to me when I speak of real side effects, is taking shitty care of me, threatens me on a regular basis and I can’t get any help. The only decent psychiatrist in town doesn’t have a private practice. My lesbian psychiatrist (who broke boundaries with me by telling me her reason for becoming a psychiatrist was coming out as a lesbian and not wanting to be accused of molesting teenagers-WTF?) will not advocate for me with my medical team and didn’t even make an appointment to follow up with me after surgery and guess what my original trauma was? Medical. As a three year old.
Yeah, double binds, just stop it.

73 William 5.9.2009 at 11:54 am

How is that “trampling on anyone’s rights? I never said EVERYONE should be medicated. I know meds don’t work for everyone and I know people are incorrectly or falsely diagnosed for a number of reasons. But I think it’s interesting how, in a discussion like this one, the point of view of anyone affected by the mental illness of someone else is silenced and invalidated.

You seem to be operating under the belief that mental illness is like physical illness. DSM diagnostic standards are qualitative, not quantitative. They’re laughed at by most psychologists and only tolerated because they’re marginally better than ICD standards and because you can’t bill insurance without providing the illusion of objective medical standards. Misdiagnosis is rampant, endemic, and systematic. It isn’t something that happens sometimes, its something that happens constantly because the diagnostic criteria are vague and utterly subjective. Interrater reliability for DSM diagnosis hovers around 60% in the field. The biggest problem with that is that a lot of these diagnoses are inescapable. There are people who argue that individuals diagnoses with Bipolar I, Schizophrenia, or Schizoaffective disorder ought to be forced to take their medication by the state. These aren’t theoretical concerns, they are the daily lived reality of people branded mad.

Theres a good reason your point of view is invalidated. Like it or not, we live in a culture which is organized around individual liberty. Individuals are not the property of their society and they have no legal obligation to make those around them comfortable. That makes your opinion about whether or not someone ought to be forced to take their medication irrelevant. I’m sorry if that makes you feel silenced, but when you’re talking about strapping someone to a table and injecting them with a drug against their will then perhaps you ought to be silent. You don’t get to have a stake in the body of another person, period. Arguing otherwise, or trying to explain why in this one situation an exception should be made, is arguing for oppression. The mad get kicked around enough, we don’t need to submit to your opinion under threat of force.

Wow. So I have no right to speak? Nice. Sorry, but there are two sides to this coin. Not only that, I did mention in my first post that I have had my own problems with mental illness, so I do understand the stigma.

I’ll come right out and say it, since there seems to be confusion. No, you do not have the right to oppress others. Sure, you can speak if you want, that is your right. But when you speak in favor of oppression and violence then I will challenge you. Your own experiences allow you to speak only for yourself, and the only person who’s medication you should have a say in is your own. The system is used to routinely oppress the mad in ways that extend far past social stigma and your distaste for the existence of certain classes of madness doesn’t justify rounding them up and pumping them full of antipsychotics until they’re less disturbing to you.

The bottom line is that any advocation of involuntary medication ends with someone strapped to a table getting a needle in their arm. That is the reality of what you’re arguing.

74 victoria 5.9.2009 at 11:57 am

Let me clarify what I meant about “safe space”.

lethe @66 and anon@67, I think it’s entirely appropriate for loved ones who have been caregivers to speak of their feelings about their experiences. It’s important for us to hear your side of it. However, the danger is that your personal experience with one or two individuals can then jump to a universalizing statement about what should be done for all people with mental illness. Then we end up with blanket statements like Dissent@68, who wants to silence the entire discussion b/c s/he knows what’s best.

If you’ve been deeply affected by someone with mental illness, share your story, share your feelings. But don’t assume that makes you able to make the leap into saying “therefore, what should be done is ______ .” The decisions about treatment are still ours to make, even if you wish we’d make different decisions.

75 William 5.9.2009 at 12:18 pm

Sitting here rereading some of the comments I’m struck by an uncomfortable similarity. Time and again I see people saying “mentally ill people choosing to be unmedicated impacts the people around them” and taking that observation to mean that medication should be mandated. I’ve seen that argument before.

MRAs and pro-life types make pretty much the same argument all the time. “Abortion impacts the father/family/society and so it should be banned/subject to permission from the father/subject to permission from the family.” We (rightly) dismiss that argument because we believe that the only person who has a right to make that decision is the person who would have to give birth. A secondary argument then tends to pop up, one explaining why even if we agree that the choice should be in the hands of the individual that in some (read: most/all) cases they just can’t be trusted to make their own decision because they’re too emotional/illogical/disobedient/depressed/hormonal. Again, we reject this argument because it is subjective. Further, we recognize it as disingenuous because we know that the standards which might be used would end up applying to all women seeking to have an abortion. We reject the catch 22 of defining competency as choosing to keep a pregnancy.

Yet here we are, arguing that because the mad are mad they can’t possibly make their own decisions and that, as a result, someone else needs to take authority of their bodies for their own good or the good of those around them.

76 flawedplan 5.9.2009 at 12:42 pm

Still spewing NAMI talking points I see. Catapulting structural propaganda without the first clue, or how that nonsense got into you. Yes, you have a lot to learn. But think about “consciousness raising”, and why that is so difficult to achieve with feminists. It’s still no alibi.

Stop making this about pro-med vs. no-med, and your excruciating justifications for how you shake out on the use of pharmaceuticals. We are passed that. This thread is a distraction, the way Chomsky uses that word. What is it we don’t want to look at? How NAMI rules your world, but you don’t even know what NAMI is? Get to work.

I’ll show you work, Lethe @ 66:

Lethe: And this article is something that we should definitely be discussing with those around us who may have to second guess whether or not we are making decisions that might hurt or damage us.

http://www.nrc-pad.org/index.php

That’s the work. Use it, fight for it.

77 XtinaS 5.9.2009 at 12:43 pm

William:

“The bottom line is that any advocation of involuntary medication ends with someone strapped to a table getting a needle in their arm. That is the reality of what you’re arguing.”

Oddly, this sounds almost exactly like the libertarian views on taxes and laws: “The bottom line is that any advocation of taxes/laws ends with a gun pointed at your head.”

78 Anon (for this one) 5.9.2009 at 1:01 pm

William,

Just to clarify…are you taking the position that there is no situation in which a person is too mentally ill to make decisions on their own behalf?

79 Sarah 5.9.2009 at 1:02 pm

Not only that, William, but there is a long and disturbing history of disabled people’s rights being circumvented under the justification of “how hard it is for the family and caretakers.” The Ashley X case, for instance, is an excellent example of this. Our ableist society privileges the experiences of non-disabled caretakers over disabled people, and it’s very disheartening to see that this discussion immediately became focused on the “normal” people. While it might be true that it’s generally good to consider other people in making personal decisions, that has very little to do with the issue of the right to autonomy, which neuroatypical people have just as much a right to as anyone else. The assumptions about people with mental illnesses on this thread are truly staggering.

80 Anon (for this one) 5.9.2009 at 1:18 pm

Victoria,

If you note, I didn’t speak about my feelings at all. My feelings aren’t relevant to this particular issue. I was pointing out that there is a huge difference between types and severity of mental illness. Most of the people who had commented (at that the time I wrote my post) had struggled with what seemed to be less severe cases. They can make choices and decisions and understand the impact of those decisions. They can dress themselves and remember their names. They know what toilets are for and that water isn’t really made of knives.

So this discussion has for the most part been centered on the needs of those who are able to speak about their mental illness in a coherent and understandable way. Compared to some others that is a relatively privileged position.

81 anonymous 5.9.2009 at 1:35 pm

Good God, William, way to twist my brief statements. So because I think people with extreme cases of certain types should take their meds or get help if it is within their power to do so “I’m speaking in favor of oppression and violence?” Give me a break. Why don’t you just call me Hitler and get it over with.

I mean really, how did you get all that from what I’ve said? You are too much!

82 The Opoponax 5.9.2009 at 1:38 pm

The essence of prejudice is to generalize from your experience from one person who hurt you and become intolerant and other everyone else in that group for the actions of one.

1. I’m not generalizing from my experience to an entire population. I’m simply saying that, yes, some people with mental illnesses can be dangerous* to others, and that people who have that dynamic going on ought to seek treatment and/or work to manage their condition in whatever way is realistic for them. With full knowledge of how fucked up the system is and how fucked up our society’s stigma about mental health problems is. And with total awareness of how hard life is for people with mental illnesses.

2. I wouldn’t really consider the above opinion to be “intolerant”. As I’ve said, I know full well how impossible the situation is, that everyone’s needs are different, how fucked up the system is, etc. And I absolutely respect the agency of people with mental illnesses. But there really do exist people who are dangerous to others due to untreated conditions, and it is absolutely irresponsible of said individuals not to seek treatment if it is available to them.

3. By the way, my opinions on this are by no means based on an interaction with only one person. As a teenager and in my early 20’s I had the pleasure of knowing quite a few bipolar individuals who thought it was really cute to go off-med for whatever reason and totally fuck up the lives of everyone around them (many of whom I truly sympathize with, but still…). It would be unfair to generalize from those individuals to all bipolar people. But to insist that such people do not exist, or that the people hurt by them don’t really count, is a fucked up lie, I’m sorry.

*and by “dangerous” I don’t mean inconveniencing, or annoying, or hard to deal with. I mean dangerous.

83 The Opoponax 5.9.2009 at 1:51 pm

Time and again I see people saying “mentally ill people choosing to be unmedicated impacts the people around them” and taking that observation to mean that medication should be mandated.

The funny thing is that I don’t recall ANYONE in this thread actually saying this. The closest might be the person who said that, in a hypothetical situation where a close friend with known mental health issues openly stated that they intended to commit suicide, zie would have a hard time not seriously considering involuntary institutionalization to save the friend’s life.

I’m pretty sure I don’t agree with said commenter, but even that statement (“I think I might perhaps agree with involuntary institutionalization in certain life-threatening situations”) is hardly the same as advocating that medication be mandated for all mentally ill people who have any negative impact at all on anybody.

In my own case, where a mentally ill person caused pretty serious actual harm to me, I still don’t necessarily think that the guy who assaulted me ought to be forced to take medication. I don’t want him strapped to a table and doped up. I want him to take responsibility for his life. He wants agency? He can start by keeping his behavior under control and obeying laws. Just like all of us who don’t have mental health issues have to.

84 Erika 5.9.2009 at 2:40 pm

I know a lot of people are talking about force, here, and I just wanted to point out my comment again (#9). I am a 22 year old college student. I went to a top 10 liberal arts college. I was the valedictorian of my high school class. I was not psychotic; I was not dangerous to anyone else. Involuntary commitment does not only happen to violent people who “act crazy.” Everyone here who is creating that strawman needs to realize that this is not at all the reality of the situation. I don’t care what you “honestly believe” about safety and mental health, because until you have experienced being a successful, healthy, normal young woman with a mental illness screaming and crying in a hospital because they won’t let you out or keep your clothes and belongings with you, you don’t know the reality of the situation. You JUST DON’T.

I was put on involuntary medical leave because of what happened. I ended up transferring to a university close to home because I didn’t want to go back to the place that that had happened.

A lot of these comments are disappointing. They make me really sad that people see the lives and desires of people with mental illnesses as totally secondary to their own. No, you shouldn’t have a right to lock people up against their will. That is my firm belief on the matter, and I understand it better than you do because I have been there and it was traumatic and it didn’t help. If this system allows that to happen, it is wrong. Period. It needs fixing, not defenders who argue that people with mental illnesses are burdens to their families/friends/caretakers.

William, thank you so much for you comments.

85 chava 5.9.2009 at 2:42 pm

I didn’t notice anyone saying it either. No, it shouldn’t be mandated by the state. That’s ridiculous and totalitarian. But that doesn’t mean that for certain people, in certain cases, it it irresponsible not to take the meds–OR otherwise aggresively manage your illness in a way that works for you. I only have personal experience with bipolar on this one, but I too knew several individuals when I was younger who would go off meds/stop going to therapy because–wait for it–because they were mad at their partner/friends. And I have experience as a child who wasn’t believed when she told other family members that hey, mommy is doing/saying some strange things…*

I have debilitating migraines. I have to take a bipolar/seizure med for them, and generally take care of myself physically. The med has some interesting side effects. But if I don’t take it, I seriously impact the lives of my loved ones.

Meh. I have a lot of baggage as the friend/loved on on this particular can of worms, and I’ve deleted a few paragraphs of this comment. Hope the edited version is OK.

*it never descended into serious physical violence. but if someone CAN be totally out of their head with madness, and still function perfectly fine to the outside world. You never know what’s going on inside a house.

86 Jaleesa 5.9.2009 at 4:12 pm

This is really tricky for me to talk about or address. There are a lot of things being said in this thread that are working my nerves. One thing I don’t believe a lot of people (even in this thread) understand is the nature of mental illness. It isn’t quite the same as being diagnosed with a physical condition. In my honest opinion, terming certain behaviors “mental illness” seem to be more a mode of social control than an honest attempt to help an individual, especially because diagnoses and treatment are often given to people who do not consent or believe that they are **suffering**. A lot of what’s considered delusional or strange is based on cultural norms, not on anything objective. Even the concept of “reality” is a subjective one. I don’t feel that reality is ever defined the same way by two different people; that, at best, definitions may be close, but will never be identical.

It is completely unfair to force a person into a treatment they don’t want or need, to tell a person that they “suffer” from a “problem” when it isn’t a problem for them, or to assume that it’s one size that fits all when it comes to how to treat a person and whatever distress they are having with their lives. It is COMPLETELY absurd to assume and actually advocate that all “mentally ill” people need to be on drugs because a **few** manage to do horrible things. I’m sure there is more crime being committed by people perceived as “normal” than there are by people perceived as crazy.

As someone who was sexually assaulted by someone I believe to have been bipolar, I understand where victims in this thread are coming from. But to group every person diagnosed in with your abuser is ridiculous, okay? It’s like saying that every black man is out to rob you. Like someone said, an abuser is an abuser. That he/she may be labeled with a few things as well is arbitrary to the point.

If a person chooses to seek out help, then they have they right. If they don’t want to, I believe they have their right as well, including the right to suicide if that person wishes.

There have been a few times where I’ve been put on the ward against my will, as well as plenty of times I’ve been dehumanized because there are too many, TOO MANY, people out there who fail to see that even with a diagnosis (or two, or four) WE ARE JUST LIKE YOU, we are human as well. I have had horrible reactions to a lot of medications, to a point where it seems even if I want medication it’s too risky to chance it.

I don’t understand why the topic of mental illness brings out the close-mindedness in people, and why it seems to be such a struggle for people to understand others who may not want to be “treated”. I don’t expect to change anyone’s minds or their stereotypes, but I just wanted to add my bit. This should be a matter of choice, like any choice involving a person’s health and life.

87 William 5.9.2009 at 4:24 pm

Oddly, this sounds almost exactly like the libertarian views on taxes and laws: “The bottom line is that any advocation of taxes/laws ends with a gun pointed at your head.”

The difference there is that when I pay my taxes, its obnoxious and I don’t necessarily agree with where the money is going but if I had a real problem with it I could move. Besides, as shitty as my taxes are, they aren’t exactly crippling. The same cannot be said of some of the major antipsychotics. Perhaps the bigger difference is that relatively few people choose not to pay their taxes, but virtually every single one of my patients has at some point been tied to a gurney and shot full of a drug for being psychotic and annoying a nurse.

Just to clarify…are you taking the position that there is no situation in which a person is too mentally ill to make decisions on their own behalf?

I’m not really a fan of absolutes, but I’m probably closer to that position than not. I’m more comfortable with involuntary commitment than I am with involuntary medication. Ultimately I feel that the issue of medication shouldn’t be one of law, so if I had to choose a side I’d choose that one. Realistically I feel that its a decision between a patient and their doctor. When it comes to substituting the will of a doctor/parent/nurse/government official for the will of a patient, and when that substitution means putting something in the patient’s body, I believe that an extremely conservative approach and an aggressive protection of the patient’s rights is a good default position. Contexts can change things and one-size-fits-all approaches tend to fail someone, but as a default I believe people shouldn’t be forced to take drugs they don’t want to.

88 The Opoponax 5.9.2009 at 4:32 pm

In my honest opinion, terming certain behaviors “mental illness” seem to be more a mode of social control than an honest attempt to help an individual, especially because diagnoses and treatment are often given to people who do not consent or believe that they are **suffering**. A lot of what’s considered delusional or strange is based on cultural norms, not on anything objective.

Sure, OK. I certainly agree that this was heavily true in the past, and don’t know to what extent it is true anymore. It seems to me (as an outsider) that the focus of diagnosis nowadays tends to be more about whether the person being diagnosed is capable of living a functional life without any sort of treatment or therapy.

I guess one could argue that in an ideal world there would be no need for theraputic treatments for neuroatypical people, that we could all enjoy perfect freedom to behave however we want at all times. But right now that doesn’t exist. People need jobs and families and relationships, and even a wider society to be a part of. Insomuch as treatment options can make that happen for people, some sort of mental health system needs to exist. I happen to feel like the one we have now is deeply flawed, and still probably too centered around removing those unsightly “crazy people” rather than helping actual human beings interact with the world in a functional way. Not to mention that a lot of people have no recourse due to lack of access, or have their options severely limited for financial reasons.

But, no, I really don’t think we’re anywhere near the freedom for neuroatypical people to just be special snowflakes who everyone walks on eggshells around all the time.

89 The Opoponax 5.9.2009 at 4:35 pm

I’m sure there is more crime being committed by people perceived as “normal” than there are by people perceived as crazy.

Sure. And people who are perceived as “normal” who commit crimes go to jail. “Remember to take your meds so you don’t flip out on people” is hardly cruel and unusual punishment.

90 William 5.9.2009 at 4:35 pm

Good God, William, way to twist my brief statements. So because I think people with extreme cases of certain types should take their meds or get help if it is within their power to do so “I’m speaking in favor of oppression and violence?” Give me a break. Why don’t you just call me Hitler and get it over with.

I mean really, how did you get all that from what I’ve said? You are too much!

You need to think through the implications of your statements. Saying “people should gtake their meds or get help” means something. Words mean things. The options for that statement are pretty limited. Either you’re talking about some general moral guideline you think might be a good idea for people to voluntarily follow (like “people should say please and thank you”) or you think that it should be public/social policy, which implies the force of law. Saying someone should do something is all very well and good, but out in the wild “oughts” tend to turn into “whats.”

91 William 5.9.2009 at 4:36 pm

Erm…that should read “oughts” tend to turn into “musts.”

92 Erika 5.9.2009 at 4:38 pm

Shouldn’t anyone who commits crimes go to jail? I’m pretty sure it’s only the crazies among us who get locked up preemptively. And it really sucks, trust me on that.

93 bellareve 5.9.2009 at 4:40 pm

I second what William, Erika, Sarah, & Jalessa wrote.

And, Opoponax, generally, those with mental illness don’t merely “think its really cute to go off-meds for whatever reason.” I can’t speak for your friends, but way to assume that neuroatypical people don’t make deliberate, thoughtful, personal choices about our bodies. (I guess women decide to get abortions “because they think its cute for whatever reason” too?)

Either you grant the mentally ill full agency as human beings in control of our own minds, bodies, and medical care, or you don’t. (Substitute “women,” “trans people,” “sex workers,” etc here and it might make more sense to you)

I’m usually the last person to cry ableism, but that is what’s going on in some of these comments, plain and simple. Ableist bullshit. Are the moderators planning to do anything?

94 Jaleesa 5.9.2009 at 4:41 pm

The Opoponax: Again, not everyone can tolerate the medication. It can be cruel and unusual punishment when the medicine creates physical hell for you far worse than anything you’ve felt unmedicated.

Your issue is with your abuser, in my opinion, not with me or anyone else in this thread expressing opposition to you.

95 Jaleesa 5.9.2009 at 4:46 pm

**Your issue is with your abuser, in my opinion, not with me or anyone else in this thread expressing opposition to you.**

Saying this to say, I won’t argue with you. I can’t argue with another person’s pain.

96 Superla 5.9.2009 at 4:47 pm

And nearly 90 comments in, no one has pointed out the Newsweek completely misrepresented The Icarus Project by painting it as anti-med or that they “balanced” the article by getting a quote from the Treatment Effing Advocacy Center.

No. Let’s keep parroting the same debate over just how dangerous those crazies are and what kind of treatment they should get when.

Stop letting TAC and NAMI define the terms of the conversation, and then maybe we could start talking about Mad Pride.

97 The Opoponax 5.9.2009 at 4:50 pm

Saying someone should do something is all very well and good, but out in the wild “oughts” tend to turn into “whats.” [or "musts"!]

Oh, bullshit. Our world has plenty of ‘oughts’ which remain oughts, with no risk whatsoever of being enshrined in public policy.

I agree with you that the problem with the mental health system is that one can’t take for granted that people are going to be treated humanely or allowed agency, so we have to be ultra-vigilant about how social mores blend into public policy (especially since, as I said upthread, historically mental health policy has been about removing the unsightly crazies, not helping human beings to live functional lives).

But when we get to a point where nobody is allowed to say “people should take care of their medical conditions”, because it’s not PC or might hurt somebody’s feelings or stifle their muse or something, that’s just fucked up. You can’t build a movement on lies, sorry. It just gives ammo to your opposition.

98 William 5.9.2009 at 4:53 pm

I’m pretty sure I don’t agree with said commenter, but even that statement (”I think I might perhaps agree with involuntary institutionalization in certain life-threatening situations”) is hardly the same as advocating that medication be mandated for all mentally ill people who have any negative impact at all on anybody.

Well…realistically and historically those two statements aren’t too far off. It wasn’t too long ago that we did just that. Anyone who was mentally ill enough to get the label was either locked away or pumped full of Thorazine or Haldol. To this day we do more or less the same thing. Once someone has lost the assumption of competency they’re pretty much at the mercy of a system that is designed less to provide care than to maintain the comfort of those on the outside. An everyday statement (“I coulda killed him I was so mad!”) that would be dismissed coming from the mouth of a normal person becomes evidence of danger and a justification for a PRN or hospitalization coming from someone with a diagnosis, even without a history of violence.

People with little social or political power tend to be oppressed and there aren’t many people lower on the totem pole than the mad.

99 Sarah 5.9.2009 at 4:58 pm

But, no, I really don’t think we’re anywhere near the freedom for neuroatypical people to just be special snowflakes who everyone walks on eggshells around all the time.

This comment is so ableist and reeking in privilege that I hardly know where to begin. (The “special snowflake” remark is particularly gratuitous.) First, if anyone’s asking for neuroatypical people to receive vastly different treatment, it’s those that would deny basic freedoms to us due a diagnosis or behavior. What neurologically atypical people are actually asking for is what all kinds of disabled people have been asking for–accommodation and equal rights, including the right to autonomy. Again, it’s common for people to argue that disability rights are “special” rights, but that doesn’t make it true. Who gets to decide how neuroatypical people “get” to act, anyway? Surely not the ableist majority or, worse, the medical profession. And people wonder why so many of us are skeptical of therapy and psychiatry! Perhaps it is because we are constantly encountering these kinds of patronizing and frankly bigoted attitudes.

Jaleesa’s remarks about applying “mental illness” as a means of social control are entirely on the mark. I think most feminists here would readily agree to this in terms of how psychiatry has historically treated women, LGBT folk, etc. But somehow there’s this perception that “things are better now,” and thus this troubling history is entirely irrelevant to people with “real MI” today. What makes you so sure?

100 The Opoponax 5.9.2009 at 5:08 pm

Jaleesa, for what it’s worth, I’m not here to argue. Aside from honesty and openness, I really don’t have a dog in this fight. I’m also listening and learning a whole lot more than you or other participants can necessarily see.

The bottom line is that, to the extent that mental illness goes beyond the kinda neat staying up all night writing manic poetry type stuff, there probably does need to be some kind of way of dealing with people who cannot function in society due to their neuroatypicality.

As someone who suffers from SAD, for instance, I really wish I could just take the months of December through February off from life. Or spend those months in a sun-drenched paradise. In an ideal world, universal socialized medicine would totally cover that for me, and I’d be helped to find a lifestyle that would minimize my symptoms.

Until that happens, I either have to deal with going through 2-3 months of terrible depression every year, or I have to spend several hours a day in front of a special lamp (which I have yet to be able to afford). It’s kind of a shit tradeoff. But, well, such is life.

Semantically, can I decide that this particular neuroatypicality is a feature and not a bug, and anyone who thinks I’m a crabby bitch in February can just fuck off? Sure. But to the extent that I have to interact with other human beings to get by in this world (and have yet to score a job that allows me to spend half the year in Rio), that’s not really a good way for me to look at things.

101 flawedplan 5.9.2009 at 5:11 pm

This is one for the vaults. People are going to look back at this thread someday in wonder.

Let’s look at dehumanization, right now. Anonymous @ 80:

Most of the people who had commented (at that the time I wrote my post) had struggled with what seemed to be less severe cases.

Cases, nice touch. “Less severe” times are the norm. Times, not cases, see the difference?

People living with severe and persistent mental illness are not psychotic 24/7. In that state no one “talks reasonably”. Now, for instance, and no thanks to you, I am not psychotic. But I was before.

What am I?

Better question: Who the FUCK do you think you are to tell me about my life.

This should not have to be said. Not anywhere, but especially not here, not in 2009.

Hold this thought next time you shit your pants when the muttering *schizophrenic* boards the bus. And the part YOU play in accessing their rational faculties, or absence thereof. Don’t deny it. You’ve already demonstrated your refusal to accommodate basic humanity in place of some repulsive chimera you’ve conjured up out of your own personal bullshit.

Oh, and this is priceless:

They can make choices and decisions and understand the impact of those decisions. They can dress themselves and remember their names. They know what toilets are for and that water isn’t really made of knives.

We don’t have Alzheimer’s. People living with Alzheimer’s dementia are in a fixed degenerative condition. They become progressively irrational and lose all clarity before they die. Nuance, liberals. One of these things is not etc etc.

And grow up, Oppotomax, lazy-ass incurious bigot. Get hip to the fact that scary behavior is part of the package, and given proper due in the “dangerous” part of “dangerous gifts”.

Shut up or catch up, seriously.

102 Jaleesa 5.9.2009 at 5:16 pm

Have to add that asking for respect concerning being mentally different ISN’T the same thing as using it as an excuse for bad behavior. There is admittedly people who use this to excuse criminal behavior or to excuse being an asshole or a bitch. But to use that as a basis for arguing against the rights of every individual with that same diagnosis is a stretch, especially because bad people will ALWAYS look for excuses. It doesn’t ever mean that whatever excuse named is the actual reason behind their actions, and we should all know that by now.

103 William 5.9.2009 at 5:17 pm

But when we get to a point where nobody is allowed to say “people should take care of their medical conditions”, because it’s not PC or might hurt somebody’s feelings or stifle their muse or something, that’s just fucked up. You can’t build a movement on lies, sorry. It just gives ammo to your opposition.

But we’re not talking about medical conditions. Sure, people we call doctor (or people supervised by people we call doctor) put the proper code on a chart, but that doesn’t make it science and medicine. We’re talking about subjectively defined, culturally bound syndromes that use social norms as an operational definition of health. Saying “people should take care of their medical conditions,” in this case, is really saying “people should be more like the norm.” There are still ICD codes for homosexuality, the DSM still lists pretty much any trans* experience as a “medical condition,” and I can’t tell you the number of clients I’ve seen whose biggest symptom is seeing the world in a way that isn’t compatible with middle class white America. Even when you’re talking about drugs which are meant to address actual symptoms (say, delusions) sometimes they don’t work.

Still, you seem to be missing an important part of the equation. Most of the mad aren’t dangerous, some of them don’t have a problem with their state, and a significant percentage feel that the problems that come with madness aren’t so terrible that they’re willing to put up with the devastating side effects that some of these drugs have. We accept people making those decisions with diseases, why is madness different?

I suffer from periodic major depressive episodes. They’re awful, they’re crippling, and there is some small chance that some day they might kill me. Antidepressants of various classes work somewhat (although theres no way I would have had the drive for grad school with them), but I’m not willing to take the side effects. I’d rather not gain a lot of weight and I enjoy having a sex drive, so I can’t take any of the tricylics. I can’t take SSRIs because I sometimes use drugs that mimic serotonin in the brain. I don’t like sweating between two and three liters a day so bupropion is out, theres no way in hell I’m putting up with the side effects of a mood stabilizer. That leaves me with toughing it out and learning to cope on my own. Its a solution that works well for me. You’ll excuse me if I don’t give a damn about your opinion, given that you aren’t me, my doctor, or my partner.

As for giving ammo to my opposition, I don’t really care. I’m on the side of the angels, and I’m sure I’ve got more ammo. Literally and figuratively.

104 Jenny 5.9.2009 at 5:20 pm

“And nearly 90 comments in, no one has pointed out the Newsweek completely misrepresented The Icarus Project by painting it as anti-med or that they “balanced” the article by getting a quote from the Treatment Effing Advocacy Center.

No. Let’s keep parroting the same debate over just how dangerous those crazies are and what kind of treatment they should get when.

Stop letting TAC and NAMI define the terms of the conversation, and then maybe we could start talking about Mad Pride.”

Erm, maybe this is because the author admitted that she didn’t know about the movement? What is the Icarus stance on medication, anyway? It also seems that a lot of people here are going by Thomas Schanz’ social model of mental illness. I also think a lot of you are talking past each other: mental illness means different things to different people, some of you seem to automatically assume that others know and understand what “mad pride” is thus they must automatically support it otherwise they are oppressive ableists.

105 The Opoponax 5.9.2009 at 5:20 pm

What neurologically atypical people are actually asking for is what all kinds of disabled people have been asking for–accommodation and equal rights, including the right to autonomy.

And I fully agree to all of that. I’m just not sure to what extent “accommodation” is really socially feasible, especially for people who are not interested in treatment. We live in a world where people need to have jobs in order to make money and provide for themselves economically. In this world, people also need interpersonal contact – we need families and friends and ties to a wider social community. It is a lot harder to help mentally ill people pursue this without resorting at all to any kind of medical treatment than it is to help a paralyzed person get a wheelchair or a blind person get a seeing eye dog.

Now, obviously, there are a lot of improvements that could be made to our existing health system that would facilitate a little of this for some people. And, yeah, obviously it would be awesome to live in a socialist utopia where nobody needs to have a job, nobody needs to obtain money in a capitalist social structure, and everyone’s needs are provided for regardless of circumstances. And that would alleviate a lot of the social stuff, too, since people wouldn’t be struggling to try to provide for a mentally ill relative. And nobody else would be stressed about material things, either, so then maybe we could get to a place where everyone really can be a special snowflake*, and we have room, socially, to accommodate people who behave in wildly divergent ways.

*I don’t entirely say this in a negative way, btw. It’s just what it is – unfortunately the world we have now does not allow for very much uniqueness of behavior or outlook, because we are tied so tightly to providing for ourselves materially in a capitalist system. It’s sort of inescapable under the current system.

106 Jaleesa 5.9.2009 at 5:25 pm

@ Oppanax: I agree completely. But there also needs to be space for people who don’t feel they are suffering from anything at all and who seem to be better people without treatment.

I don’t at all believe that any one side (for or against treatment) is better than the other. I just take issue with the assumption that treatment benefits everyone, whether is therapy or medication. Just as free-birding it doesn’t work for everyone, neither does treatment and I just want it impressed that’s it’s high time that view is respected.

Like I said, there are bad people out there who do use their “illness” to justify shitty behavior. I don’t feel these assholes should be chosen as representatives of what happens when people choose not to medicate, that’s all.

107 akeeyu 5.9.2009 at 5:30 pm

This thread keeps getting worse and worse.

Opoponax, you said:
“But when we get to a point where nobody is allowed to say “people should take care of their medical conditions”, because it’s not PC or might hurt somebody’s feelings or stifle their muse or something, that’s just fucked up. You can’t build a movement on lies, sorry. It just gives ammo to your opposition.”

Do you know what it’s like to be unable to get diagnosed, unable to get treated, unable to afford your meds, unable to find a med that doesn’t actively destroy organs? I’m thinking not, or you wouldn’t be so blithe about saying “people should take care of their medical conditions.”

It’s been about twenty years since I became symptomatic, over ten since I was diagnosed, and I just now found a drug that doesn’t suck too much. It costs over $400 a month, and I had to fight to get it covered.

I AM LUCKY.

Please stop being so flip about PC and making statements about treatment and lies.

Please start listening.

108 The Opoponax 5.9.2009 at 5:36 pm

Most of the mad aren’t dangerous, some of them don’t have a problem with their state, and a significant percentage feel that the problems that come with madness aren’t so terrible that they’re willing to put up with the devastating side effects that some of these drugs have. We accept people making those decisions with diseases, why is madness different?

I agree with all of this. And I don’t think madness is different from making decisions about any other medical issue.

Again, I don’t think people should be forced to take medication. I think if people are able to live functional lives, they can do what they choose. You like your mental condition, and are able to live with it and provide for yourself and aren’t a burden on anyone else? Awesome, more power to you.

And, hell, I think even people who are not able to care for themselves should still have the autonomy to make their own decisions. I think nothing short of complete and total inability to make or communicate decisions should interfere with that.

I think our health care and welfare systems should be reformed to enable more people who might not be functional in the strictest sense (unable to work, for instance) to live good lives, including the agency to choose what that means for them. And there should be no strings attached, no carrots and certainly no sticks.

But then I also think that there comes a point where people have to abide by the so-called social contract. You have to follow laws. You have to at least attempt not to unnecessarily torment others. Unfortunately, society exists. If you want to be a part of it, you have to find a place and somewhat conform to what that place means. You don’t get to have the parts you want and opt out of the rest.

Again, this is all a hell of a lot more complicated than building a ramp or training a seeing eye dog.

109 The Opoponax 5.9.2009 at 5:41 pm

Akeeyu, if there is no available treatment that works, then there is no available treatment that works. If you don’t have access to adequate healthcare, then you just don’t, and that fucking sucks. That doesn’t invalidate the idea that people who do have access to workable treatments ought to use them. Especially if not using them means being an undue burden on others, or hurting people, or being unable to function.

110 Jaleesa 5.9.2009 at 5:46 pm

Suicide as a right really needs to re-enter the discussion. There’s a way to possibly avoid burdening society with sick people. It’s been my personal experience that downsides to being crazy isn’t forcing a person to conform insomuch as it’s forcing a person to live. Life is too often toted as mandatory instead of what it is…a choice. Survival itself is a choice.

But I think that’s another discussion alltogether…

111 Jaleesa 5.9.2009 at 5:50 pm

Or that people don’t EXPERIENCE those downsides except when confronted with the idea that they have to live, without a choice of whether they want to do it or not. I really didn’t value my life until I’d survived suicide, to be honest. It was the best thing I could’ve ask to happen to me as far as a wakeup call.

I think, in general, we attach too many bad connations to death and really have tried to make it something we can avoid or overcome.

112 Jaleesa 5.9.2009 at 6:08 pm

I also must add that I was heavily medicated when I chose to overdose, and there’s a lot of evidence to support that both medicine and my shitty excuse for a psychiatrist (who would up my doses for expressing atheism, for example) had more an influence in that than anything.

I’m sure, as I said, that there are things that really work for some people but when it comes to this, it’s not one-size fits all. By extension, when it comes to life, not everyone is made for it. I’ve often viewed insanity, pure insanity, hallucinations, delusions…these are how some people can survive. If you take that away from them, how can there be so much outrage on what a “burden” they are? Forcing people to live while you disable the only way they can adapt to life is cruel in my eyes.

And again, there’s no excuse for bad people but there’s an awful lot of criminals who dream of suicide and who, from what I see, would probably be no trouble to the world if there weren’t so many safeguards in place that don’t really allow a person to chose the life they want, or choose to end it, without feeding them so much bullshit about what’ll happen to them if they do it. Where suicide can be considered more morally abhorrent than rape or murder.

Fear of death has shaped everyone’s ideas of how the world should be, including how we take care of ourselves and how we fit into society. We tend to dismiss the uncomfortable, but true fact that death is something we can all count on.

If you asked a person to choose their life (instead of telling them that they should or medicating and stigmatizing them when they’re not sure), I honestly believe that even the most apparently suicidal would choose life and learn how to live it.

113 larkspur 5.9.2009 at 6:11 pm

I know Down syndrome is not a mental illness. This is just an analogy.

The daughter of a friend of mine has Down syndrome. I first met her when she was a young adult. I had to read up on Down syndrome, and found out that the genetic feature starts out at the very beginning of fetal development. In other words, my friend’s daughter started out as a person with Down syndrome: it wasn’t a prenatal injury or anything. She was never not going to be a person with Down syndrome. (I mention this because I found it oddly comforting.)

Everyone knows that 50 years ago (or thereabouts), parents were typically counseled not to bond with their DS child, but to institutionalize them and try to “forget” them.

That doesn’t happen much any more. That’s good, because of course Down syndrome people are fully human.

But Down syndrome is a majorly transformative occurrence. There are concomitant physical issues that have to be addressed, and there are individual personality issues, and it makes no sense to either pretend that Down syndrome is a gift because DS individuals are often sunny and affectionate, or warehouse them as if they were sub-human. Down syndrome just is. Each Down syndrome person is going to need extra help, and each family is going to need extra help from the community. It’s just what we’re supposed to do for each other.

In the wholly different realm of mental illness, we can’t lose sight of the fact that we’re all fully human. There isn’t the touchstone of specifically identified genetic markers, and we just don’t know the extent of the interaction between environment and physiology. So we do the best we can. Yes, a lot of our current therapies are virtually sledgehammer-like. I know about my depression and anxiety. I don’t know how it feels to have severe OCD, bi-polar disorder, or schizophrenia, but I’ve seen how devastating it can be.

The original “mad pride” topic made me angry, because it reminded me too much of the old R.D. Laingesque romanticization of mental illness, making it sound all elegant and other-worldly when really it is horrible and painful and isolating. That’s the analogy with Down syndrome. You don’t fail to treat DS heart problems, for example, because it means you think DS people are defective or less than human. You treat the heart problems because lots of times the heart problems can be treated, and that can improve a person’s life. Sometimes various drugs and talk therapies can improve your life if you have a mental illness. I respect William’s decision, but have made a different one for myself.

On a whole other tangent, I have to say I think about Andrea Yates fairly often. (She’s the woman with post-partum psychosis who drowned her five children.) Post-partum psychosis is catastrophic. She needed to have been physically removed from her home and followed closely, because apparently medication did mitigate her illness. Committing her would have been cruel and painful, but really necessary. It’s the kind of thing that we have to do, and then apologize for later, and ask for forgiveness. At this time, our knowledge is so imperfect that we have to just do the best we can. And we have to re-visit our treatment and methods and decisions constantly. Unfortunately, in the US, health care of all types is getting more and more inaccessible.

114 Jenny 5.9.2009 at 6:32 pm

I think that is very well said, lark.

115 chava 5.9.2009 at 6:46 pm

I wanted to say something about the primary topic of the opening post (i.e., can we see mental illness as a kind of “gift”):

I think, after everything we have been through, that in a strange, strange way it can be a gift. Life for my mentally ill parent hasn’t roses and sunshine. But the world in their head is arguably better than the real history that happened. It is, for lack of a better word, more interesting, more full of life, painful in less deeply damaging ways. It’s an alternate reality that, for the most part, doesn’t impact how she goes around her daily life. It has given her a whole world to write about, a way to make art. It’s MY neurosis that can’t stand it when she talks about people that never existed, it isn’t like it hurts me in any direct way. It’s ME that feels the need to bring her to “reality.”

I explain my life to people by asking if they’ve seen Big Fish. I don’t know if forcing my mother to take meds would make her finally happier, or if making her sane, making her come down to MY reality, would just be…unkind, given what I think happened “for real” to her. Really, for us non-mad people, that’s all we HAVE, is this little illusion of reality that cracks so damn easily. It’s only a very easy step from where all the “normal” people are to where she is.

Madness is like any other disability. We’re all only temporarily sane.

I don’t think that absolves people of the responsibility to manage their own illness, when they are aware of it, in a way that helps themselves and their families. I don’t think mentally ill people are any different from anyone else–i.e., they have just as much good in them and just as much bad, some just as much tendency to manipulate their illness and some an amazing, jaw dropping capacity to rise above it. But on the whole, we’re all mostly just trying to survive.

116 chava 5.9.2009 at 6:51 pm

To add:

I’m aware of how back breakingly difficult getting adaquate mental help can be, and that those people who aren’t lucky enough to have money and caring families are often a short step away from homelessness or death. So take the last paragraph of the previous comment to mean that if you have the resources at your disposal, you have a responsibility.

117 Chantal 5.9.2009 at 6:53 pm

Wow, this thread has gotten really hateful really fast. Holy shit, I don’t know what’s worse, the broad-sweeping Rousseau-style rhetoric that equates “making me uncomfortable” to “violating the social contract”, or the idea that most mentally ill individuals have no idea what ‘proper’ behavior is.

larkspur, how about you let us define what our mental illness means to us? Do you understand that I am not the only one who tried to kill hirself when zie got the diagnosis? Saying it’s suffering and painful and horrible, and not anything to be ‘celebrated’, steals our voices. Mad Pride wasn’t invented by neurotypical folks who fetishize us (although there are a substantial number of those, just like there are people who fetishize people with other disabilities); it was invented BY US and FOR US.

Telling us that we don’t understand, which is what you imply when you get angry about how we’re “misrepresenting it”, is incredibly insulting.

Oh, and for the record, very few people in Icarus or elsewhere believe that Andrea Yates and individuals who are genuinely dangerous should not be institutionalized. We’re not asking for the “right” to go around and kill people because we think it’s saving them from eternal torment. We’re asking for the distinction between “disturbing” and “dangerous” to be understood and clarified. Trying to argue otherwise is a misrepresentation, a straw man, and a red herring. Try reading what we actually say some time.

118 Salome 5.9.2009 at 7:10 pm

Meowser, I think you kind of got the sentiment of my comment wrong, no offense. I’m not against fat acceptance; in fact, as someone who is overweight, I consider it an awesome thing. I agree that overweight does not equal “unhealthy,” just as underweight does not equal “healthy.”

What I meant is that fat acceptance, like the “mad pride” thing, only works to an extent because when you have people at either extreme of the weight spectrum – whether unhealthily obese or unhealthily thin – then they should realize that they could be putting themselves at risk for certain health problems, and their body weight isn’t healthy. They should not be stigmatized for their weight, of course, but just because they don’t deserve discrimination or belittlement doesn’t mean their weight is healthy. (Likewise with “mad pride” – just because they don’t deserve to be discriminated against, it doesn’t mean it’s the best idea for them to refuse medical attention.) It’s true that that may not change anything, but I don’t think it’s quite the same as income. People who are unhealthily overweight can get medical attention to alleviate some of the issues associated with obesity, such as heart disease, diabetes, etc. even if they don’t actually lose all that much weight. Most low-income people aren’t going to get “richer” unless we change our system more so that education and job opportunities are more evenly provided to people of all income brackets. I also think that an individual decision to eat better and exercise could make a difference for some (not all) obese people, but the idea of poor people just “pulling themselves up by their bootstraps” doesn’t work when they don’t have access to any of the opportunities that would allow them to move up on the income bracket.

Like with the “mad pride” thing, it does depend on the person, whether their weight and the health problems associated with it are worth seeking medical attention or not. But telling everyone “you don’t have to do anything about it!” is not the best idea, IMO.

119 Salome 5.9.2009 at 7:17 pm

Also, I wanted to make a point that while society seems to think that people who are even the least bit overweight are in need of medical attention, I’m only talking about people who are so obese that it leads to severe health problems. (I don’t want to use the term “morbidly obese”, but it’s that weight-range that I’m referring to.) I tried to make that clear in my comment, but I don’t think I quite got it.

120 shah8 5.9.2009 at 7:21 pm

I, too, find this discussion…mildly disturbing.

1) The majority of people do not live in reality by choice. Just because there are consensual necessary delusions (religion, currency, free will, things of that nature), does not mean that there aren’t a multitude of “unnecessary” delusions that people indulge in. Many of these delusions are highly, highly destructive to themselves or to others. Most of the time, the public at large accepts their attitudes as one they have a right to have. The disturbed are just that…disturbing to others. Meanwhile, many of the disturbed think that the norm is fucking nuts, and they’d (we, really) be right.

2) My real problem with this thread is how much it is about desperate mental illness rather seeing psyche as a spectrum. It’s basically parallel to the ticking time bomb torture frame. There is little discussion on people who are functional and even less about what functional means. Perpetually talking about mental issues in terms of crisis moments precludes real discussion, which I think has to include a bit of patter on exogenously created crazyness (like mental breakdowns from overwork). I also think there needs to be alot more discussion of how much society needs “crazy” people as a captured market for pharms and service companies. Not to mention the whole reinforcement of what is normal.

3) Oh, and to reinforce what has been said before, the majority of the time, psychotropic drugs are poorly prescribed and administered because a major reason they are used is for control of people who are different (or to make lots of money). It is understood that they work for some people here. However, is it understood that people who comment here are one hell of a self-selected population? That if you actually had a representative sample, you might find something other than you expect?

121 Chantal 5.9.2009 at 7:21 pm

Salome, here’s what I’m getting from you: You are concerned that “Mad Pride” might go too far and encourage people not to get treatment, even unconsciously.

I think you underestimate the power of internal motivation. I didn’t reach out for other ways of making myself better because everyone treated me like shit; I did it because I had things I wanted to do and I couldn’t do them if I continued the way I was.

It’s the same, I think, with both fat acceptance and mad pride.

122 RD 5.9.2009 at 7:30 pm

I have such mixed feelings about this. I’m in a relatively unique position, I think; I’ve been hospitalized without my consent. Being involuntarily committed to a locked psychiatric facility is, and I cannot say this forcefully enough, the absolute most degrading and humiliating thing that has ever happened to me, and I cannot imagine anything worse.

Give me a break, that does not put you in a unique position. I’ve been involuntarily committed and its not pleasant (and varies from hospital to hospital) but I can’t help but read your comment and think, wow, you must have a pretty cushy life, if you’ve seriously never experienced anything (or can even imagine anything!) more humiliating and degrading than that. Come on.

That said, I’m all for this “pro-choice” and “mad pride” stuff.

123 RD 5.9.2009 at 7:32 pm

psychotropic drugs are poorly prescribed and administered because a major reason they are used is for control of people who are different

Yes, I completely agree.

124 victoria 5.9.2009 at 7:37 pm

this here “special snowflake” is done with this thread. it’s triggering too much anger and pain to keep on reading.

125 Jill 5.9.2009 at 7:44 pm

I’ve been running around all weekend and haven’t had time to monitor this thread, which was clearly a mistake. Apologies for letting it get so out of hand. I also think it’s too far gone at this point to be productive, so I’m shutting down comments.

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